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	<title>Girl in a Party Hat &#187; newborns with special needs</title>
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		<title>Blanket Statement</title>
		<link>http://girlinapartyhat.com/index.php/2016/06/blanket-statement/</link>
		<comments>http://girlinapartyhat.com/index.php/2016/06/blanket-statement/#comments</comments>
		<pubDate>Sat, 04 Jun 2016 01:29:31 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[newborns with down syndrome]]></category>
		<category><![CDATA[newborns with special needs]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5720</guid>
		<description><![CDATA[I got a Facebook message the other day from a guy I don&#8217;t know well, an artist in town. He and his wife just had their second baby, he wrote. And the baby has Down syndrome. I invited myself over. He said okay. I think I went more for me than for them. It was [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><a href="http://girlinapartyhat.com/wp-content/uploads/2016/06/IMG_9218.jpg"><img class="aligncenter wp-image-5738" src="http://girlinapartyhat.com/wp-content/uploads/2016/06/IMG_9218-300x300.jpg" alt="IMG_9218" /></a></p>
<p>I got a Facebook message the other day from a guy I don&#8217;t know well, an artist in town. He and his wife just had their second baby, he wrote. And the baby has Down syndrome.</p>
<p>I invited myself over. He said okay. I think I went more for me than for them. It was weird &#8212; I felt this overwhelming desire to sit on their couch and tell this guy and his wife that everything was going to be okay. I didn&#8217;t have anything profound to say, I just wanted to wave hello from the other side.</p>
<p>But what to bring along? I don&#8217;t know if they are vegetarians or lactose intolerant or gluten lovers; bringing food to people you don&#8217;t know very well is so problematic these days. This is their second son, so they likely don&#8217;t need clothes. I felt weird bringing diapers, even though that&#8217;s the one thing all parents of newborns really need. (That and tequila, in my humble opinion.)</p>
<p>Then I remembered the blanket. When Sophie was a couple weeks old, a woman I didn&#8217;t know came to the house with dinner and her son, who was about a year older than Sophie. He has Down syndrome. She was a friend of a friend. She also brought a sweet fleece blanket with smiling kid heads on it, the kind you cut fringe into for a DIY look. At the time, the blanket enveloped Sophie; it felt so big. I dug it out of a pile of clean laundry. It&#8217;s actually the size of a large dish towel. Not long after that dinner, the woman and her family moved away. We don&#8217;t know know each other super well; I see her on Facebook. I&#8217;ll never forget that small kindness.</p>
<p>The blanket. Perfect. I wrapped it up and grabbed Sophie. The visit was brief. The husband and I caught up, the wife and I talked about hearts (this baby&#8217;s is okay) and Sophie played shy, running off to their toddler&#8217;s room to find some toys.</p>
<p>&#8220;It&#8217;s okay,&#8221; I told them when there was a lull in the conversation. &#8220;Everything is going to be okay.&#8221;</p>
<p>Where did that come from? Fuck, I don&#8217;t know if everything is going to be okay. We could all get hit by a truck tomorrow. Donald Trump could get elected. But I needed to say it. I felt it really strongly.</p>
<p>The other thing I told them was that it&#8217;s normal (for me it was, anyway) to feel weird about the whole thing. I can&#8217;t put it as well as a friend who wrote me recently, to tell me about her own daughter, who was born with a scary (yes, things like Down syndrome are scary!) medical condition.</p>
<p>&#8220;I just remember looking at this tiny baby and thinking, `I don’t even know this person yet. I love her because she’s my daughter, but should I keep her at arm’s length in case I lose her? Am I doing that already?&#8217; The kind of thoughts that you’re so grateful no one else can hear because they would judge the shit out of you,&#8221; my friend wrote.</p>
<p>Exactly. Except we all judge ourselves. I hope these parents don&#8217;t do that, I hope they are good to themselves, that they watch junk TV and eat take out and go to the movies when they can get a sitter. I hope they wrap their baby in that smiley face blanket and hold him forever &#8212; or for as long as it takes. (I don&#8217;t think it will take long, they seem to be highly evolved &#8212; more than I am, at least.)</p>
<p>And even though the blanket is already a little pilled, I hope that if they hear of a family with a baby with Down syndrome that they wrap up the blanket and bring it over as a gift and tell those parents, &#8220;It&#8217;s going to be okay.&#8221;</p>
<p><em>Amy&#8217;s book, &#8220;My Heart Can&#8217;t Even Believe It: A Story of Science, Love, and Down Syndrome,&#8221; was published by <a href="http://woodbinehouse.com">Woodbine House</a> this spring and is available through <a href="http://www.amazon.com/My-Heart-Cant-Even-Believe/dp/1606132741/ref=sr_1_1?s=books&amp;ie=UTF8&amp;qid=1461694505&amp;sr=1-1&amp;keywords=my+heart+can%27t+even+believe+it">Amazon</a> and <a href="http://www.changinghands.com/product/9781606132746">Changing Hands Bookstore</a>. For information about tour dates and other events visit <a href="http://www.myheartcantevenbelieveit.com">myheartcantevenbelieveit.com</a> and <a href="https://vimeo.com/157810496">here&#8217;s a book trailer</a>.</em></p>
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