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	<title>Girl in a Party Hat &#187; mainstreaming</title>
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		<title>Mamas, Don&#039;t Let Your Babies Watch &quot;Charlie Bit Me&quot;</title>
		<link>http://girlinapartyhat.com/index.php/2008/11/mamas-dont-let-your-babies-watch-charlie-bit-me/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/11/mamas-dont-let-your-babies-watch-charlie-bit-me/#comments</comments>
		<pubDate>Tue, 25 Nov 2008 06:21:41 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Charlie Bit Me]]></category>
		<category><![CDATA[children biting]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[inclusion]]></category>
		<category><![CDATA[kindergarten]]></category>
		<category><![CDATA[mainstreaming]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=738</guid>
		<description><![CDATA[Ms. X did not sound pleased. &#8220;Sophie had a really bad day today,&#8221; she said. We were on the phone, but I could see her shaking her head. Sophie was out of sorts all day, in ball buster mode, totally stubborn. Refused to come in from the playground, wouldn&#8217;t listen to directions. &#8220;Oh, and she [...]]]></description>
			<content:encoded><![CDATA[<p>Ms. X did not sound pleased.</p>
<p>&#8220;Sophie had a really bad day today,&#8221; she said. We were on the phone, but I could see her shaking her head. Sophie was out of sorts all day, in ball buster mode, totally stubborn. Refused to come in from the playground, wouldn&#8217;t listen to directions.</p>
<p>&#8220;Oh, and she bit someone,&#8221; Ms. X said in a rush, like it was an afterthought. I know she knew I&#8217;d freak.</p>
<p>&#8220;SHE WHAT?!&#8221;</p>
<p>&#8220;She bit someone. But, but &#8212; it wasn&#8217;t bad. She just took a kid&#8217;s fingertip in her mouth. I don&#8217;t think she meant to really bite. It didn&#8217;t break the skin.&#8221;</p>
<p>Apparently another kid actually left a bruise on a classmate last month, so this really wasn&#8217;t much by comparison. Still, Ms. X and I both know it&#8217;s got to be nipped in the bud. (So to speak.) Sophie was sent to another classroom for 15 minutes, and it was during Reading Buddies, when Annabelle&#8217;s class was there to read with the kindergarteners. Big punishment.</p>
<p>As always, I could tell Ms. X felt badly about being stern with Sophie. And she was quick to tell me that the last 20 minutes of school, Sophie was absolutely perfect.</p>
<p>Super.</p>
<p>&#8220;And as she was leaving, she gave me a hug and said, &#8216;You come my house Thanksgiving!&#8217;&#8221; Ms. X reported happily.</p>
<p>I was not happy. I called Ray to report on the day&#8217;s events and warn that he not mention the bite. We don&#8217;t want to make a big deal, I cautioned.</p>
<p>&#8220;OK, no problem,&#8221; he replied, not seeming concerned. &#8220;I know where she got it.&#8221;</p>
<p>&#8220;Where?!&#8221;</p>
<p>&#8220;From watching `Charlie Bit Me.&#8217;&#8221;</p>
<p>Grr. Not on my watch. I&#8217;m the queen of inappropriate, but even I have my limits.</p>
<p>Am I the only one who doesn&#8217;t find that You Tube video funny? Check it out for yourself if you&#8217;re among the handful of Americans who hasn&#8217;t seen it:</p>
<p><a href="http://www.youtube.com/watch?v=HE4FJL2IDEs">http://www.youtube.com/watch?v=HE4FJL2IDEs</a></p>

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		<title>On Strawberry Milk and Playground Safety</title>
		<link>http://girlinapartyhat.com/index.php/2008/11/on-strawberry-milk-and-playground-safety/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/11/on-strawberry-milk-and-playground-safety/#comments</comments>
		<pubDate>Wed, 12 Nov 2008 22:43:18 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[children]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[inclusion]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[parenting]]></category>
		<category><![CDATA[playground safety in public schools]]></category>
		<category><![CDATA[school cafeteria]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=703</guid>
		<description><![CDATA[Word around school this week is that Sophie&#8217;s been swiping other kids&#8217; drinks at lunch. She drains her juice box and nabs someone else&#8217;s drink, particularly if it&#8217;s strawberry milk. I stuck 35 cents in this morning, so she could get her own, which she thoroughly enjoyed. I didn&#8217;t mean to be in the cafeteria during [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-704" title="sophie-lunch" src="http://girlinapartyhat.files.wordpress.com/2008/11/sophie-lunch.jpg" alt="sophie-lunch" /></p>
<p>Word around school this week is that Sophie&#8217;s been swiping other kids&#8217; drinks at lunch. She drains her juice box and nabs someone else&#8217;s drink, particularly if it&#8217;s strawberry milk. I stuck 35 cents in this morning, so she could get her own, which she thoroughly enjoyed.</p>
<p>I didn&#8217;t mean to be in the cafeteria during her lunch hour, but Sophie spotted me at school this morning so I promised to reappear at lunch &#8212; then hustled through Mrs. Z&#8217;s Xeroxing (man, I better not quit my day job &#8212; the copy machine and I DO NOT get along) and made it over for most of the kindergarten lunch hour.</p>
<p>Arrgh. I&#8217;d heard all about kindergarten lunch &#8212; it&#8217;s legendary &#8212; and most recently, both my mother and Sophie&#8217;s occupational therapist had spent time in the cafeteria, observing.</p>
<p>What a freaking mess. I know the idea is to let the kids blow off steam during the lunch hour (um, it&#8217;s hardly an hour &#8212; 30 minutes from start to finish, including time on the playground) but it&#8217;s ridiculously out of control in that cacophonous, smelly, linolium-lined lunch room. I didn&#8217;t see one kid finish his/her lunch. Probably a good thing, considering what they were serving &#8212; something that passed for a BBQ rib sandwich. I had to ask a kid what it was.</p>
<p>Sophie brings her lunch, mostly so I can put stuff in that she&#8217;s able to eat easily and quickly. It was a liquid lunch for her today (probably every day); I was lucky she consumed half a mini-quiche. The raisins went untouched and the cheese/crackers were just played with.</p>
<p>And Sophie stays in the lunch room almost the whole time; I was blown back against the wall when someone blew a whistle and most of the kids cleared out to the playground. Before the half hour was over, I&#8217;d clapped my hands over my eyes at least twice. (It is true that I scare easily.)</p>
<p>I braced myself for the playground, having been warned about the horrendous ratio &#8212; every kindergartener in the school versus one &#8220;duty&#8221; (please, someone, come up with a better term!). The woman walked around the playground, looking hard and blowing her whistle; but lacking eyes in the back of her head, I just don&#8217;t see how she (or any one person) can adequately watch all those kids.</p>
<p>Last week when my mom was there, a little girl wet her pants. Today a kid fell and skinned her hand; she didn&#8217;t know what to do. Neither did I.</p>
<p>As I&#8217;ve written before (I&#8217;m almost sure I&#8217;ve covered this already in some depth) there is no law &#8212; state or federal &#8212; regarding playground ratios at public schools. The ratio at the aftercare program at our school is 12 kindergarteners to one adult. In the classroom it&#8217;s as high as 23 (maybe higher) and outside, apparently a 1 to 90 (or so) ratio is cool.</p>
<p>The duty has a walkie talkie, the principal told me, the first time I complained. Anyhow, she said, the school&#8217;s not violating the law.</p>
<p>Yeah, I replied. Because there is no law.</p>
<p>I&#8217;m holding off while I formulate my second complaint. I need more ammo. And, yeah, less snark.</p>

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		<title>Bribing Miss Sophie</title>
		<link>http://girlinapartyhat.com/index.php/2008/11/bribing-miss-sophie/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/11/bribing-miss-sophie/#comments</comments>
		<pubDate>Tue, 11 Nov 2008 13:12:46 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[bribing kids with Down syndrome]]></category>
		<category><![CDATA[Elmo]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[kindergarten]]></category>
		<category><![CDATA[laminating]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[parenting]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=694</guid>
		<description><![CDATA[The Elmos aren&#8217;t working. Not so much, not anymore. At first, they worked so well, it seemed like a miracle. But I knew it wouldn&#8217;t last. Like most souls, Sophie is very interested in a good bribe. I see nothing wrong with that. Positive reinforcement is what it&#8217;s all about, as far as I&#8217;m concerned. [...]]]></description>
			<content:encoded><![CDATA[<p>The Elmos aren&#8217;t working. Not so much, not anymore.</p>
<p>At first, they worked so well, it seemed like a miracle. But I knew it wouldn&#8217;t last.</p>
<p>Like most souls, Sophie is very interested in a good bribe. I see nothing wrong with that. Positive reinforcement is what it&#8217;s all about, as far as I&#8217;m concerned. I do it with myself constantly. (Go for that long walk and you can have a double non-fat latte! Do the dishes and I&#8217;ll let you read those back issues of Vogue and Elle you&#8217;ve been hoarding! Write a paragraph, shop on etsy.com. Organize your bedroom and as a special treat, you might get to see the floor again!)</p>
<p>You get the idea.</p>
<p>The system with Sophie in kindergarten is a little more intricate. A chart was fashioned with velcro and laminated (someday I will blog about laminating, I promise. Short story: I am afraid of the laminating machine) cut outs of Elmos.</p>
<p>Each morning, Sophie works to &#8220;earn&#8221; 5 Elmos. Same in the afternoon. The rewards vary, to mix it up and keep her interested: Courtney, the latest Wonder Nanny (we have a team of 5 at the moment!) actually purchased and painted a &#8220;treasure box&#8221; and filled it at the dollar store. Or Sophie can work for chocolate ice cream with Ms. X or on a very special day, a trip to Chuck E. Cheese.</p>
<p>I think her favorite reward, though, is a chance to stay after school and play teacher. And therein might lie some of the problem: Sophie, not unlike her mother, is a control freak.</p>
<p>So it&#8217;s no wonder the bribes aren&#8217;t working, the ante must be upped. I have one shoe on and one off, in preparation for that latte-earning walk, so this is To Be Continued.</p>
<p>But if anyone has any ideas for a good bribe, send them my way!</p>

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		<title>I Spy</title>
		<link>http://girlinapartyhat.com/index.php/2008/11/i-spy/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/11/i-spy/#comments</comments>
		<pubDate>Mon, 03 Nov 2008 21:50:43 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Down syndrome]]></category>
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		<category><![CDATA[kindergarten]]></category>
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		<description><![CDATA[I was really excited for Halloween this year, and not just for the usual reasons. I couldn&#8217;t wait for the Kindergarten Halloween Festival and, finally, a chance to spy. It&#8217;s a tradition at the girls&#8217; school. (The festival, not the spying.) Every Halloween, all the kindergarteners &#8212; and only the kindergarteners &#8212; parade through the [...]]]></description>
			<content:encoded><![CDATA[<p>I was really excited for Halloween this year, and not just for the usual reasons. I couldn&#8217;t wait for the Kindergarten Halloween Festival and, finally, a chance to spy.</p>
<p>It&#8217;s a tradition at the girls&#8217; school. (The festival, not the spying.) Every Halloween, all the kindergarteners &#8212; and only the kindergarteners &#8212; parade through the school in their costumes. Cutest thing ever. Then they gather in the cafeteria for the morning, where sevearl stations are set up with carnival-like activities: story telling, cookie decorating, pin-the-smile-on-the-jack o&#8217; lantern. That kind of thing.</p>
<p>I signed up immediately as a helper for the morning. It was my first real look at Sophie in action, amongst her peers. I&#8217;ve banned myself from her classroom, which kills me. Not that I have so many hours to volunteer, but I&#8217;ve always managed some lurking time in Annabelle&#8217;s classroom. It&#8217;s good for her to see me around, and even better for me to see what&#8217;s up in the space my kid occupies for such a big hunk of her life.</p>
<p>Last year when Annabelle was in first grade I got an eyeful of just how much time some teachers spend texting (hey, it was a new boyfriend, cut her some slack) and got to organize someone else&#8217;s supply closet &#8212; which for some reason is infinitely easier than organizing any of my own crap. This year I&#8217;m in absolute awe of Mrs. Z and her Smart Board (google it if you&#8217;ve never heard of one &#8212; amazing) and her ability to keep just enough control over a group of 7 year olds to get them to work without feeling like they&#8217;re working.</p>
<p>And while I&#8217;m grading homework, I get to keep tabs on the kids&#8217; social lives. I admit that&#8217;s the best part.</p>
<p>But I&#8217;ve never gotten to hang with Sophie&#8217;s class. In pre-school, parents were pretty much banned from the classroom. At first I was really upset, but Sophie&#8217;s wonderful teacher promised she&#8217;d be a different kid with Mommy around. &#8220;We&#8217;ll videotape her if you want,&#8221; she said. I was allowed to come at Hanukkah, and the teacher was right: Sophie spent the whole time showing off for me and disrupting the group.</p>
<p>Lesson learned, sadly, so I&#8217;ve stayed away from kindergarten. I&#8217;m lucky because Ms. X keeps me posted on classroom activities and Sophie&#8217;s ups and downs. But as I stood with Sophie the other day before school, I realized I know very few of the kids in her class. Several of the girls, yes, but not many by name, and the only boy I recognized was the one who came to school on Picture Day with both ears pierced. (He&#8217;s memorable, and also a good friend to Sophie.)</p>
<p>The Kindergarten Festival went well, although I got stuck at the math station &#8212; not my strong suit. OK, I admit it&#8217;s not like it was algebra. The kids made patterns with construction paper pumpkins, ghosts and bats. Still, it was stressful, and partly because I was afraid of what I would see. Would the other kids  leave Sophie in the dust?</p>
<p>Let&#8217;s say I was pleasantly horrified. I&#8217;d figured she&#8217;d emerge as the slowest, but as I got to see each kid complete (or not) an activity that required a bit of concentration and effort, I realized that Sophie&#8217;s hardly at the bottom of the pile.</p>
<p>I&#8217;m not deluding myself, trust me. Well, maybe I am, but not entirely. Last week the &#8220;Clifford Journal&#8221; came home &#8212; the kids are allowed to take home a stuffed Clifford the Big Red Dog to play with, then asked to write about the &#8220;visit&#8221; in the journal.</p>
<p>My eyes welled up as I flipped through the book. Many kids had drawn fairly intricate portraits of Clifford engaged in activities around the house, along with several well-constructed sentences describing the visit.</p>
<p>Sophie wrote her name in her Sophie way, and drew a, well, a more rudimentary picture than the others in the journal. She dictated her description of the visit to me, which I dutifully wrote, verbatim:</p>
<p><img class="alignnone size-full wp-image-656" title="sophie-clifford" src="http://girlinapartyhat.files.wordpress.com/2008/11/sophie-clifford.jpg" alt="" /></p>
<p>&#8220;Don&#8217;t feel bad,&#8221; Ms. X said when I mentioned it. &#8220;I&#8217;ve watched parents dictate to their kids. They don&#8217;t come up with that stuff themselves.&#8221;</p>
<p>But even that wouldn&#8217;t have worked with Sophie. She still has trouble forming the letters to more than her name, dictated or not.</p>
<p>So I was nervous as I set out glue sticks and paper cut outs. And yeah, I saw my share of whiz kids. But what surprised me was how many kids were completely unable to do the simple task at my station. Although patterns are a big thing in kindergarten &#8212; the precursor to math and all that, something that has no doubt been covered to death by three months into the school year &#8211; some children stared blankly when faced with the task. A few couldn&#8217;t figure out how to rub the glue stick on the back of the paper, or how to get the finished product into the brown bag they were carrying around.</p>
<p>By the end of the morning, I&#8217;d decided several things:</p>
<p>I will never, ever teach elementary school.</p>
<p>Sophie&#8217;s doing just fine in kindergarten.</p>
<p>And she looked damn cute in her Cookie Monster costume.</p>
<div><span lang="EN"><img class="alignnone size-full wp-image-654" title="sophie-cookie" src="http://girlinapartyhat.files.wordpress.com/2008/11/sophie-cookie.jpg" alt="" width="113" height="150" /></span></div>
<div><span lang="EN"> </span></div>
<div><span lang="EN"> </span></div>
<div><span lang="EN"> </span></div>
<p><span lang="EN"> </span></p>

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		<title>Someone Kick My Butt, Please</title>
		<link>http://girlinapartyhat.com/index.php/2008/10/someone-kick-my-butt-please/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/10/someone-kick-my-butt-please/#comments</comments>
		<pubDate>Thu, 02 Oct 2008 21:58:43 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[aides in the classroom]]></category>
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		<category><![CDATA[Down syndrome]]></category>
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		<category><![CDATA[kindergarten]]></category>
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		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=523</guid>
		<description><![CDATA[Just when I think we&#8217;re just fine, making do with what Sophie&#8217;s being handed (or not) in kindergarten, something happens to knock me off my clogs. (If you&#8217;ve never worn clogs, you won&#8217;t understand that saying.) I reconnected this week with a lovely woman in town whose daughter is just about Sophie&#8217;s age, and also has [...]]]></description>
			<content:encoded><![CDATA[<p>Just when I think we&#8217;re just fine, making do with what Sophie&#8217;s being handed (or not) in kindergarten, something happens to knock me off my clogs. (If you&#8217;ve never worn clogs, you won&#8217;t understand that saying.)</p>
<p>I reconnected this week with a lovely woman in town whose daughter is just about Sophie&#8217;s age, and also has Down syndrome. We wrote on each other&#8217;s &#8220;walls&#8221; on Facebook (if someone can explain that whole Wall thing versus the Email thing versus Status Comments, please do, and while you&#8217;re at it, what the hell does it mean when someone Pokes you?) and swapped quick kindergarten tales.</p>
<p>I&#8217;ll cut to the chase. Her kid &#8212; who goes to a public school in a neighboring district &#8212; gets a personal aide in the classroom 18 hours a week! That&#8217;s huge! Sophie doesn&#8217;t get someone to walk her from the cafeteria to the playground.</p>
<p>Something&#8217;s wrong with this picture, and if it was in reverse, I know this lovely woman would be kicking my butt toward an advocate or a law office. I need to do something. As Sophie&#8217;s physical therapist said this morning, it&#8217;s about her safety. I don&#8217;t want to rock the boat. But how can I help it?</p>
<p>Damn the economic crisis &#8212; we couldn&#8217;t sell our house and move to that better district even if we wanted to. And open enrollment is not an option for special needs kids; they&#8217;re too expensive.</p>
<p>At least Fall Break starts tomorrow, so I can indulge in one of my favorite pasttimes: procrastination.</p>

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		<title>Sophie Flies through the First Quarter of Kindergarten</title>
		<link>http://girlinapartyhat.com/index.php/2008/10/sophie-flies-through-the-first-quarter-of-kindergarten/</link>
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		<pubDate>Wed, 01 Oct 2008 12:38:11 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Sophie Goes to Kindergarten]]></category>
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		<category><![CDATA[Amy Silverman]]></category>
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		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=515</guid>
		<description><![CDATA[Kindergarten is a quarter gone. We had our parent/teacher conferences yesterday. It&#8217;s still well over 100 degrees &#8212; heck, it&#8217;s barely October &#8212; so it just doesn&#8217;t feel right to call the semester half in the can. But it is. Sophie is halfway done with her first half of kindergarten. And Annabelle&#8217;s half done with [...]]]></description>
			<content:encoded><![CDATA[<p>Kindergarten is a quarter gone. We had our parent/teacher conferences yesterday.</p>
<p>It&#8217;s still well over 100 degrees &#8212; heck, it&#8217;s barely October &#8212; so it just doesn&#8217;t feel right to call the semester half in the can. But it is. Sophie is halfway done with her first half of kindergarten.</p>
<p>And Annabelle&#8217;s half done with the first half of second grade. Ray and I beamed through her conference &#8212; she&#8217;s a little above grade level for reading and right at grade level for math, and her teacher, Mrs. Z., adores her. The feeling&#8217;s mutual; Annabelle practically melts when she hears Mrs. Z&#8217;s name. I grilled Mrs. Z about mean girl stuff and whether AB&#8217;s a nag (no and no) and we talked about Annabelle&#8217;s morning ritual.</p>
<p>Before Sophie came to school with Annabelle, AB had us all to herself. Ray or I would drive both girls to the end of the block, put Sophie on the school bus (the pre-school insisted, and it was a cush ride &#8212; just Sophie and one or two other kids, and she had her own car seat) then drive AB to school, where we&#8217;d have a few minutes of one-on-one before the bell rang.</p>
<p>That&#8217;s over this year. This year we&#8217;re juggling both girls, and while Sophie&#8217;s much better than she was a few weeks ago, from the moment we step out of the car she has to be encouraged to stay on the straight and narrow. I have to leave Annabelle to put her own backpack on, while I make sure Sophie doesn&#8217;t run into traffic. We have to pause when Sophie refuses to relinquish the crossing guard&#8217;s hand. And we usually have to chase Sophie in one direction (out to the playground) or another (away from the older kids&#8217; classrooms). Annabelle&#8217;s old enough to line up with her classmates when the first bell rings &#8212; and most mornings she does &#8212; but she&#8217;d rather I stay by her side and walk in with the line. I try, but most days I&#8217;m corraling Sophie into her own classroom.</p>
<p>And so we have developed a ritual. Annabelle stands outside her classroom, waiting for one last hug. &#8220;Once she has that hug, she&#8217;s fine,&#8221; Mrs. Z. assured us yesterday. She thinks it&#8217;s sweet. So do I, though I see it as a sign of my own neurotic tendencies, lurking.</p>
<p>But there was no denying it was a terrific conference. I made Ray give me a high five as we headed for Ms. X&#8217;s room across the breezeway. &#8220;I just worry about Annabelle once she hits fifth and sixth grade,&#8221; Ray said. &#8220;Yeah, that&#8217;s when I began screwing around, too,&#8221; I replied. (Although I think our definitions vary dramatically; my idea of screwing around was not doing my homework and reading unassigned books. Ray was way cooler &#8212; I&#8217;ll leave it at that.)</p>
<p>We were late for Ms. X. She had all the paperwork laid out, and first handed us the reports from the therapists &#8212; occupational and speech. I was immediately struck by how little those reports meant. Sophie gets 20 minutes at a time with these women, who are certainly well-meaning but also paid to simply catalogue their activities with special needs children. So much of the job is about making sure the reports are done, to satisfy the requirements of the IEP. What the kindergarten teacher has to say is the money shot, I realized. (I knew this already, sort of, but it was really made clear when she handed us those reports.)</p>
<p>I was eager to get a look at Sophie&#8217;s report card. I have to admit that I was a little startled to see a couple of &#8220;N&#8221;s for &#8220;needs improvement&#8221;. I&#8217;m thinking back, and I&#8217;m not sure I&#8217;ve ever seen an &#8220;N&#8221; on a report card. Not on one of mine (in third grade, I did get an S minus &#8212; S is for satifactory, the minus was NOT &#8212; for handwriting, which pissed me off so much I cleaned up my act immediately) and not on one of Annabelle&#8217;s.</p>
<p>But Ms. X is more than right, of course. Sophie DOES need improvement when it comes to completing tasks on her own. Most of her grades were P for progressing, with a couple S&#8217;s thrown in. And Ms. X swears she&#8217;s doing remarkably, that she is listening better at carpet time, following directions, even staying on the playground at recess. (The playground safety thing is still on my mind; I&#8217;m trying to figure that one out &#8212; a blog for another day.)</p>
<p>Ms. X pulled out a looseleaf binder, and flipped through Sophie&#8217;s section. She showed us that Sophie has, indeed, mastered every one of her sounds. &#8220;And she&#8217;s really not the last one to do it?&#8221; I asked (I asked AGAIN, I&#8217;m geting annoying, I know, but I had to hear it).</p>
<p>She looked through her notebook and reported that Sophie is actually the FIRST kid in her class to get every single sound. Sophie recognizes almost every letter (a couple exceptions: the lower case L &#8212; duh, it looks like an I! &#8212; and the &#8220;typewriter g&#8221;) and is on her way to counting to 100. She can sight read several words:</p>
<p><img class="alignnone size-full wp-image-518" title="sophie-words" src="http://girlinapartyhat.files.wordpress.com/2008/10/sophie-words.jpg" alt="" /></p>
<p>And check out her &#8220;first quarter portrait&#8221; &#8212; true, she does have just one nostril:</p>
<p><img class="alignnone size-full wp-image-519" title="sophie-quarter-portrait" src="http://girlinapartyhat.files.wordpress.com/2008/10/sophie-quarter-portrait.jpg" alt="" /></p>
<p>She got an &#8220;S&#8221; for writing her first name, and Ms. X assured us she&#8217;s stopped drawing on other kids&#8217; papers. The PE teacher reports that the kids are &#8220;mother henning&#8221; her less and interacting with her more as friends.</p>
<p>Of course I sat there wondering what Ms. X isn&#8217;t telling us, though I hear from her nearly every day. (Again, my neurotic tendencies.) I know things are far from perfect. On Monday morning, Annabelle tripped on the playground before school. Of course she was standing right in front of me when it happened. (Don&#8217;t you love being there to witness your kids&#8217; injuries?!) I grabbed her hand, then Sophie&#8217;s, and started marching to the nurse&#8217;s office.</p>
<p>It wound up being close to nothing, but Annabelle did get a bloody lip, which startled both Sophie and me. Halfway to the nurse, we passed two good mom friends; they agreed to walk Sophie to class. &#8220;I&#8217;ll be back to say goodbye!&#8221; I called to Sophie as I hustled Annabelle away.</p>
<p>In the nurse&#8217;s office, Annabelle was washed and Band Aided. The bell rang. A few moments later, I heard the quietest knock possible on the door. It took me a minute to even realize what it was. I opened the door, and there was Sophie. She marched in the door and walked directly to Annabelle, giving her a hug and examining her wounds. Before I&#8217;d had time to react, the door swung open and in walked Ms. X.</p>
<p>&#8220;Sophie, that is not all right! You are not to leave the classroom!&#8221; Ms. X said, in her perfect stern kindergarten teacher way. Sophie followed her out the door, sheepish. (My friends had deposited her in the classroom just fine; the escape happened later.)</p>
<p>In some ways, Sophie&#8217;s actions were totally appropriate. She was worried about her sister. But they were also completely unsafe. Ms. X assured us yesterday that Sophie&#8217;s not the only kid in the class with challenges &#8212; far from it she said, laughing. But of course I worry.</p>
<p>I will always worry.</p>
<p>Ray hadn&#8217;t seen the bulletin board with Dan the Flying Man. I haven&#8217;t read the book, but I&#8217;m guessing Dan is a character who flies. Ms. X asked each of the kids to draw themselves flying, and stapled them up in a line. Ms. X pointed out Sophie&#8217;s flying figure &#8212; a happy blue shape, not as complex as the others&#8217;, but way better than she would have done in July, that&#8217;s for sure.</p>
<p><img class="alignnone size-full wp-image-520" title="sophie-figure" src="http://girlinapartyhat.files.wordpress.com/2008/10/sophie-figure.jpg" alt="" /></p>
<p>And my favorite part is that she&#8217;s up there flying with her classmates, keeping up. She looks pretty good.</p>
<p><img class="alignnone size-full wp-image-521" title="sophie-figure-group" src="http://girlinapartyhat.files.wordpress.com/2008/10/sophie-figure-group.jpg" alt="" /></p>

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		<title>A Serenity Prayer for Parents</title>
		<link>http://girlinapartyhat.com/index.php/2008/09/a-serenity-prayer-for-parents/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/09/a-serenity-prayer-for-parents/#comments</comments>
		<pubDate>Fri, 19 Sep 2008 21:22:47 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Sophie Goes to Kindergarten]]></category>
		<category><![CDATA[children]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[kindergarten]]></category>
		<category><![CDATA[life]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[parenting]]></category>
		<category><![CDATA[public education]]></category>
		<category><![CDATA[school safety]]></category>
		<category><![CDATA[serenity prayer for parents]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=491</guid>
		<description><![CDATA[Most afternoons, the phone rings. Ms. X. swore up and down she&#8217;d keep me posted about Sophie&#8217;s trials and tribulations this year, and as far as I can tell, she&#8217;s kept the promise. The news varies. Often it involves an indiscretion or safety breach. For example, on Monday, Sophie announced to some other kids (but not [...]]]></description>
			<content:encoded><![CDATA[<p>Most afternoons, the phone rings. Ms. X. swore up and down she&#8217;d keep me posted about Sophie&#8217;s trials and tribulations this year, and as far as I can tell, she&#8217;s kept the promise.</p>
<p>The news varies. Often it involves an indiscretion or safety breach. For example, on Monday, Sophie announced to some other kids (but not the teacher!) that she was going to the bathroom, and took off for the nurse&#8217;s office without a &#8220;buddy&#8221;.</p>
<p>Not good. Sophie has solemnly promised all of us she won&#8217;t do that again, and Ms. X. has noticed that she does seem to try things only once, but not again &#8212; like yesterday, when she unrolled an entire roll of toilet paper in the bathroom. (The nurse was not pleased; I don&#8217;t blame her.)</p>
<p>I&#8217;m hopeful. We&#8217;ll see if she leaves the TP alone from now on.</p>
<p>One piece of news in the past few days made my heart soar, and I thought sharing it would be a good way to end the week.</p>
<p>Ms. X called on Tuesday afternoon. &#8220;So I was testing all the kids on their sounds, and I tested Sophie, and she knows all of them,&#8221; she told me. &#8220;She knew most of them at the beginning of school, but now she knows them all!&#8221;</p>
<p>Cool, I thought, having no idea what that really meant, or why Ms. X was so darn excited. The next day I asked her, &#8220;You know the sound testing thing? Was Sophie the last kid in the class to get that, or are there others who still haven&#8217;t?&#8221; (I&#8217;m weak; I compare.)</p>
<p>No, I was told. Only one or two other kids in the class have mastered all their sounds.</p>
<p>OH.</p>
<p>Well, how was I supposed to know that? I have no idea what to expect of Sophie. She surprises me every day, and I never know if that&#8217;s a good thing or a bad thing. (Or what it says about me, which I fear is not good at all.)</p>
<p>I&#8217;m not a prayer kind of person, or a god kind of person, but I feel like maybe there should a Serenity Prayer for Parents:</p>
<p>SOMEONE, <span style="font-family:Georgia;">grant me the serenity<br />
to accept the things I cannot change about my kid;<br />
courage to change the things I can;<br />
and wisdom to know the difference. </span></p>

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		<title>Least Restrictive Setting, My A&#8211;</title>
		<link>http://girlinapartyhat.com/index.php/2008/09/least-restrictive-setting-my-a/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/09/least-restrictive-setting-my-a/#comments</comments>
		<pubDate>Wed, 17 Sep 2008 14:10:21 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Sophie Goes to Kindergarten]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[IEP]]></category>
		<category><![CDATA[Individualized Education Program]]></category>
		<category><![CDATA[least restrictive setting]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[principal]]></category>
		<category><![CDATA[public school]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=486</guid>
		<description><![CDATA[When I pulled up in front of the school yesterday morning, I noticed the &#8220;word of the week,&#8221; posted on the school sign, is INITIATIVE. I had no clue how to apply that. And by the end of the meeting with the principal, my cluelessness was evident. Also my bitchiness. &#8220;Were you raised in New [...]]]></description>
			<content:encoded><![CDATA[<p>When I pulled up in front of the school yesterday morning, I noticed the &#8220;word of the week,&#8221; posted on the school sign, is INITIATIVE.</p>
<p>I had no clue how to apply that. And by the end of the meeting with the principal, my cluelessness was evident. Also my bitchiness.</p>
<p>&#8220;Were you raised in New York?&#8221; the private psychologist asked me, as we walked outside. </p>
<p>No, I replied. Why do people always ask me that? (That&#8217;s a rhetorical question.)</p>
<p>Maybe it was the full moon. Ms. X said she could feel it in her kids &#8212; she called it before she&#8217;d even looked at the calendar.</p>
<p>Or maybe I was just doomed. I&#8217;m never going to get what I want for Sophie. Clearly bringing the psychologist didn&#8217;t do it. Probably the only thing that would work is a lawyer.</p>
<p>The principal DID apologize for abandoning two meetings in a row. She DID acknowledge that I&#8217;m not the first parent to complain about playground safety, and teacher/student ratios. But she was quick to tell me her numbers (she says it&#8217;s 1 to 88; i&#8217;d heard 1 to 92) are perfectly legal.</p>
<p>&#8220;I know,&#8221; I said. &#8220;I researched it. They&#8217;re legal because there is no law.&#8221;</p>
<p>Whoops. I shouldn&#8217;t have said that. She frostily answered that she&#8217;s well within the district policy. (So now I need to research THAT.)</p>
<p>She told me that if we write into Sophie&#8217;s IEP that someone must walk my child from the cafeteria to the playground each day at lunch, that counts as a personal aide. &#8220;And then it wouldn&#8217;t be the least restrictive setting for Sophie,&#8221; she said, &#8220;and you&#8217;d need to research other programs in the district.&#8221;</p>
<p>(I&#8217;m beginning to hate the term &#8220;least restrictive setting&#8221; as much as I hate the term &#8220;retard&#8221;.)</p>
<p>I think this is the point in the conversation where I actually used the word bullshit. I saw her literally start to quiver, then stop. I did feel badly, but kept going.</p>
<p>&#8220;Look, I KNOW what a personal aide is. You mean to tell me that someone to spend 5 minutes ensuring my kid&#8217;s safety is the same as a full time aide in the classroom?&#8221;</p>
<p>She claimed that&#8217;s how the district sees it. Her suggestion (mandate): Find some sort of solution that doesn&#8217;t have to be written into a binding legal document.</p>
<p>Hmmm. Why does that make me nervous?</p>
<p>Everything about this principal makes me nervous. I think about that old neumonic (is that how you spell neumonic? I doubt it) device &#8212; &#8220;the principal is your pal&#8221;. I wish. I&#8217;d like to think so. As always, she said all the right things, that she loves Sophie, that she thinks Sophie is in the right place. I feel myself pulled toward her, wanting to like her. But she&#8217;s like a boss, and you always have to be careful about getting chummy with the boss.</p>
<p>&#8220;Yeah,&#8221; I thought, &#8220;as long as I don&#8217;t ask you for anything.&#8221; (At least that one didn&#8217;t come out of my mouth.)</p>
<p>And really, the upshot of yesterday&#8217;s meeting was that sthe principal took the opportunity to belittle the poor speech therapist who had had the guts to complain to her about the 1 to 92 playground thing. (The speech therapist does duty once a week, so she knows firsthand what it&#8217;s like.) Oh, and she was obviously mad at another team member who&#8217;d shared information about another kid&#8217;s IEP. The principal made it clear she was holding that woman back after the meeting, to let her have it.</p>
<p>I didn&#8217;t let anyone have it. Not really. Because I wasn&#8217;t sure what to say. If I was writing a story about someone else in this situation, I&#8217;d know just what they should say and do, and I know where to go to find the information to make the case. But as such, I&#8217;m lost.</p>

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		<title>Sophie&#8217;s IEP is Mildly Retarded</title>
		<link>http://girlinapartyhat.com/index.php/2008/09/sophies-iep-is-mildly-retarded/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/09/sophies-iep-is-mildly-retarded/#comments</comments>
		<pubDate>Wed, 10 Sep 2008 15:16:33 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Sophie Goes to Kindergarten]]></category>
		<category><![CDATA[Amy Silverman]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[IEP]]></category>
		<category><![CDATA[Individualized Education Program]]></category>
		<category><![CDATA[kindergarten]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[Sophie]]></category>
		<category><![CDATA[state funding in Arizona]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=466</guid>
		<description><![CDATA[Tomorrow&#8217;s a big day. Or not. Sophie&#8217;s IEP team is meeting, to review her first month of kindergarten. When we were putting the finishing touches on Sophie&#8217;s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal [...]]]></description>
			<content:encoded><![CDATA[<p>Tomorrow&#8217;s a big day. Or not.</p>
<p>Sophie&#8217;s IEP team is meeting, to review her first month of kindergarten.</p>
<p>When we were putting the finishing touches on Sophie&#8217;s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal to teacher to therapists to parents) a month into kindergarten, to see how Sophie was doing.</p>
<p>I could feel some internal eye rolling; IEP&#8217;s are a huge pain in the butt, if only for how hard it is to get all those people in the room at the same time. But at the time I signed the IEP, I had real doubts &#8212; mainly about Sophie&#8217;s safety at a &#8220;big kids&#8221; school. Why not get together to see how things are going, and make changes if necessary?</p>
<p>OK. It was agreed. When the speech therapist &#8212; a lovely woman who&#8217;s new to the school, if not the profession &#8212; suggested we meet September 11, I bristled. School started August 4th. That&#8217;s NOT a month. It&#8217;s five weeks. But I kept my mouth shut. I have learned to do that, in such situations. The ballbuster me (gee, wonder where Sophie gets THAT?) has learned to make way for the sweet-as-pie-mother-of-a-special-needs-kid me. Well, sometimes the ballbuster gets in the way. We&#8217;ll see tomorrow. But for now, I&#8217;ve been fairly sweet, if I do say so myself.</p>
<p>I didn&#8217;t say anything about the date, but when the speech therapist then emailed to confirm this would just be a &#8220;get to know each other&#8221; session, I freaked a little. Um, no, I replied. This is an IEP meeting. There might be changes necessary.</p>
<p>I hear the speech therapist is freaked, too. Apparently she IS rather new, and she&#8217;s used to dealing with kids with speech delays, rather than global disabilities. And here it gets a little confusing: Sophie has the &#8220;mild retardation&#8221; label but her IQ is so high (and yes, I know, IQ tests are bullshit, but hey, better high than low, I always say, to paraphrase Shrek) she doesn&#8217;t qualify for services from the special education teacher, who would typically lead the team.</p>
<p>In any case, I am approaching this meeting with trepidation. I already know that I won&#8217;t get what I want, which is a parttime aide to keep Sophie safe on the playground and at lunch. And I know (after a conversation with the school psychologist yesterday) that I better brace myself for the advice (yet again) that really, Sophie might be better off in a &#8220;pull out&#8221; program, the one where the other &#8220;special&#8221; kids go.</p>
<p>But because of her aforementioned IQ, she doesn&#8217;t qualify for that &#8220;special&#8221; program. She belongs where she is. But she needs to be safe. Between this and Sarah Palin, I really do wonder &#8212; AM I ON AN EPISODE OF THE TWILIGHT ZONE???</p>
<p>Part of my coping mechanism &#8212; when faced with tough kid challenges and fear of the future of America &#8212; is to organize. Well, to try. I&#8217;ve already shown you pictures of my playroom, so I can&#8217;t pretend. I&#8217;ve had the stamp pad out a lot. I figure anything that can go in a Rubbermaid from Target is, somehow, containable and doable. I made a new bin for Sophie&#8217;s paperwork &#8212; and that&#8217;s just the stuff from the last couple months that needs to be filed.</p>
<p><img class="alignnone size-full wp-image-468" title="sophie-paper" src="http://girlinapartyhat.files.wordpress.com/2008/09/sophie-paper.jpg" alt="" /></p>
<p>So we&#8217;ll have this meeting tomorrow (which will generate even more paper for the SOPHIE PAPER bin) and we&#8217;ll talk about a lot of things and I&#8217;ll bring  up the aide and I&#8217;ll get shot down and that will pretty much be that, unless I decide to go all ball buster on them and I really don&#8217;t want to do that. I wish I believed in God so I could pray for Sophie&#8217;s safety, because at this point that&#8217;s my best bet.</p>
<p>And here&#8217;s the kicker: My ace in the hole did not pan out. A few weeks ago, I talked to a rather zealous but well-meaning former state legislator, who was horrified Sophie doesn&#8217;t get an aide. She insisted that Sophie&#8217;s got state dollars attached directly to her, because of her diagnosis, and that I simply need to play that card in the IEP meeting, to tell the group that I know how much extra money they&#8217;re getting for Sophie, and that they better spend it on her.</p>
<p>So I made the calls and the preliminary figures are in. I&#8217;m double checking, since this sounds so ridiculous even for the painfully backward state of Arizona, but if I&#8217;m right, here&#8217;s the extra amount of money dedicated to a kid like Sophie (a kid who qualifies as &#8220;mildly retarded,&#8221; boy I hate that term, I think I hate the word mild even more than the word retarded!), each year of public school:</p>
<p>Nine dollars.</p>
<p>That won&#8217;t even buy my Starbucks for a week.</p>

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		<title>Ballerina Sophie</title>
		<link>http://girlinapartyhat.com/index.php/2008/09/ballerina-sophie/</link>
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		<pubDate>Mon, 08 Sep 2008 04:54:28 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Amy Silverman]]></category>
		<category><![CDATA[ballet class]]></category>
		<category><![CDATA[children]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[mainstreaming]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=460</guid>
		<description><![CDATA[Yesterday was a big deal. Sophie&#8217;s first day of ballet. For years now, friends have kindly murmured things meant to be nice &#8212; things like, &#8220;Maybe there&#8217;s something else Sophie can do for a hobby. She doesn&#8217;t have to do everything Annabelle does.&#8221; Ray told me I was ridiculous to push it. And I have [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-461" title="ballerinas" src="http://girlinapartyhat.files.wordpress.com/2008/09/ballerinas.jpg" alt="" /></p>
<p>Yesterday was a big deal. Sophie&#8217;s first day of ballet.</p>
<p>For years now, friends have kindly murmured things meant to be nice &#8212; things like, &#8220;Maybe there&#8217;s something else Sophie can do for a hobby. She doesn&#8217;t have to do everything Annabelle does.&#8221; Ray told me I was ridiculous to push it. And I have to admit that when we found out Sophie had Down syndrome, one of my pat lines was, &#8220;Well, she can take modern dance instead of ballet.&#8221;</p>
<p>But as with so many things in her life, Sophie made her own mind up about ballet &#8212; and the rest of us had to scamper to catch up. She&#8217;s been trying to break into the classrooms at my mom&#8217;s studio (yes, for those coming late to the party, my mother&#8217;s a ballerina; runs her own childrens academy) since she could army-crawl.</p>
<p>Yesterday was the beginning of Annabelle&#8217;s fifth year of instruction, and Sophie&#8217;s first class. We were unusually early (for us), both girls in the dark blue leotards prescribed by the studio, hair slicked back neatly (for us), excitement brimming in the back seat of the station wagon. And some trepidation up front.</p>
<p>Turns out, Sophie blended in nicely with the 3 and 4-year-old beginners &#8212; still the smallest kid in the class, despite her age. She only tried to escape the room twice (I was glad we&#8217;d hired an extra aide to keep an eye on her, from afar) and that was when she caught a glimpse of me through the window.</p>
<p>But my mom and I did get a few minutes watching in before Sophie noticed me. And we both had a nice little cry.</p>
<p>Sophie, on the other hand, was all smiles.</p>
<p><img class="alignnone size-full wp-image-462" title="sophie-ballet-1" src="http://girlinapartyhat.files.wordpress.com/2008/09/sophie-ballet-1.jpg" alt="" /></p>

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