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	<title>Girl in a Party Hat &#187; Individualized Education Program</title>
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		<title>Least Restrictive Setting, My A&#8211;</title>
		<link>http://girlinapartyhat.com/index.php/2008/09/least-restrictive-setting-my-a/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/09/least-restrictive-setting-my-a/#comments</comments>
		<pubDate>Wed, 17 Sep 2008 14:10:21 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Sophie Goes to Kindergarten]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[IEP]]></category>
		<category><![CDATA[Individualized Education Program]]></category>
		<category><![CDATA[least restrictive setting]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[principal]]></category>
		<category><![CDATA[public school]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=486</guid>
		<description><![CDATA[When I pulled up in front of the school yesterday morning, I noticed the &#8220;word of the week,&#8221; posted on the school sign, is INITIATIVE. I had no clue how to apply that. And by the end of the meeting with the principal, my cluelessness was evident. Also my bitchiness. &#8220;Were you raised in New [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>When I pulled up in front of the school yesterday morning, I noticed the &#8220;word of the week,&#8221; posted on the school sign, is INITIATIVE.</p>
<p>I had no clue how to apply that. And by the end of the meeting with the principal, my cluelessness was evident. Also my bitchiness.</p>
<p>&#8220;Were you raised in New York?&#8221; the private psychologist asked me, as we walked outside. </p>
<p>No, I replied. Why do people always ask me that? (That&#8217;s a rhetorical question.)</p>
<p>Maybe it was the full moon. Ms. X said she could feel it in her kids &#8212; she called it before she&#8217;d even looked at the calendar.</p>
<p>Or maybe I was just doomed. I&#8217;m never going to get what I want for Sophie. Clearly bringing the psychologist didn&#8217;t do it. Probably the only thing that would work is a lawyer.</p>
<p>The principal DID apologize for abandoning two meetings in a row. She DID acknowledge that I&#8217;m not the first parent to complain about playground safety, and teacher/student ratios. But she was quick to tell me her numbers (she says it&#8217;s 1 to 88; i&#8217;d heard 1 to 92) are perfectly legal.</p>
<p>&#8220;I know,&#8221; I said. &#8220;I researched it. They&#8217;re legal because there is no law.&#8221;</p>
<p>Whoops. I shouldn&#8217;t have said that. She frostily answered that she&#8217;s well within the district policy. (So now I need to research THAT.)</p>
<p>She told me that if we write into Sophie&#8217;s IEP that someone must walk my child from the cafeteria to the playground each day at lunch, that counts as a personal aide. &#8220;And then it wouldn&#8217;t be the least restrictive setting for Sophie,&#8221; she said, &#8220;and you&#8217;d need to research other programs in the district.&#8221;</p>
<p>(I&#8217;m beginning to hate the term &#8220;least restrictive setting&#8221; as much as I hate the term &#8220;retard&#8221;.)</p>
<p>I think this is the point in the conversation where I actually used the word bullshit. I saw her literally start to quiver, then stop. I did feel badly, but kept going.</p>
<p>&#8220;Look, I KNOW what a personal aide is. You mean to tell me that someone to spend 5 minutes ensuring my kid&#8217;s safety is the same as a full time aide in the classroom?&#8221;</p>
<p>She claimed that&#8217;s how the district sees it. Her suggestion (mandate): Find some sort of solution that doesn&#8217;t have to be written into a binding legal document.</p>
<p>Hmmm. Why does that make me nervous?</p>
<p>Everything about this principal makes me nervous. I think about that old neumonic (is that how you spell neumonic? I doubt it) device &#8212; &#8220;the principal is your pal&#8221;. I wish. I&#8217;d like to think so. As always, she said all the right things, that she loves Sophie, that she thinks Sophie is in the right place. I feel myself pulled toward her, wanting to like her. But she&#8217;s like a boss, and you always have to be careful about getting chummy with the boss.</p>
<p>&#8220;Yeah,&#8221; I thought, &#8220;as long as I don&#8217;t ask you for anything.&#8221; (At least that one didn&#8217;t come out of my mouth.)</p>
<p>And really, the upshot of yesterday&#8217;s meeting was that sthe principal took the opportunity to belittle the poor speech therapist who had had the guts to complain to her about the 1 to 92 playground thing. (The speech therapist does duty once a week, so she knows firsthand what it&#8217;s like.) Oh, and she was obviously mad at another team member who&#8217;d shared information about another kid&#8217;s IEP. The principal made it clear she was holding that woman back after the meeting, to let her have it.</p>
<p>I didn&#8217;t let anyone have it. Not really. Because I wasn&#8217;t sure what to say. If I was writing a story about someone else in this situation, I&#8217;d know just what they should say and do, and I know where to go to find the information to make the case. But as such, I&#8217;m lost.</p>
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		<item>
		<title>Sophie&#8217;s IEP is Mildly Retarded</title>
		<link>http://girlinapartyhat.com/index.php/2008/09/sophies-iep-is-mildly-retarded/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/09/sophies-iep-is-mildly-retarded/#comments</comments>
		<pubDate>Wed, 10 Sep 2008 15:16:33 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Sophie Goes to Kindergarten]]></category>
		<category><![CDATA[Amy Silverman]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[IEP]]></category>
		<category><![CDATA[Individualized Education Program]]></category>
		<category><![CDATA[kindergarten]]></category>
		<category><![CDATA[mainstreaming]]></category>
		<category><![CDATA[Sophie]]></category>
		<category><![CDATA[state funding in Arizona]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=466</guid>
		<description><![CDATA[Tomorrow&#8217;s a big day. Or not. Sophie&#8217;s IEP team is meeting, to review her first month of kindergarten. When we were putting the finishing touches on Sophie&#8217;s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>Tomorrow&#8217;s a big day. Or not.</p>
<p>Sophie&#8217;s IEP team is meeting, to review her first month of kindergarten.</p>
<p>When we were putting the finishing touches on Sophie&#8217;s IEP (Individualized Education Program, the document that prescribes her school situation, from what therapies she gets to where she pees) I insisted we reassemble the team (everyone from principal to teacher to therapists to parents) a month into kindergarten, to see how Sophie was doing.</p>
<p>I could feel some internal eye rolling; IEP&#8217;s are a huge pain in the butt, if only for how hard it is to get all those people in the room at the same time. But at the time I signed the IEP, I had real doubts &#8212; mainly about Sophie&#8217;s safety at a &#8220;big kids&#8221; school. Why not get together to see how things are going, and make changes if necessary?</p>
<p>OK. It was agreed. When the speech therapist &#8212; a lovely woman who&#8217;s new to the school, if not the profession &#8212; suggested we meet September 11, I bristled. School started August 4th. That&#8217;s NOT a month. It&#8217;s five weeks. But I kept my mouth shut. I have learned to do that, in such situations. The ballbuster me (gee, wonder where Sophie gets THAT?) has learned to make way for the sweet-as-pie-mother-of-a-special-needs-kid me. Well, sometimes the ballbuster gets in the way. We&#8217;ll see tomorrow. But for now, I&#8217;ve been fairly sweet, if I do say so myself.</p>
<p>I didn&#8217;t say anything about the date, but when the speech therapist then emailed to confirm this would just be a &#8220;get to know each other&#8221; session, I freaked a little. Um, no, I replied. This is an IEP meeting. There might be changes necessary.</p>
<p>I hear the speech therapist is freaked, too. Apparently she IS rather new, and she&#8217;s used to dealing with kids with speech delays, rather than global disabilities. And here it gets a little confusing: Sophie has the &#8220;mild retardation&#8221; label but her IQ is so high (and yes, I know, IQ tests are bullshit, but hey, better high than low, I always say, to paraphrase Shrek) she doesn&#8217;t qualify for services from the special education teacher, who would typically lead the team.</p>
<p>In any case, I am approaching this meeting with trepidation. I already know that I won&#8217;t get what I want, which is a parttime aide to keep Sophie safe on the playground and at lunch. And I know (after a conversation with the school psychologist yesterday) that I better brace myself for the advice (yet again) that really, Sophie might be better off in a &#8220;pull out&#8221; program, the one where the other &#8220;special&#8221; kids go.</p>
<p>But because of her aforementioned IQ, she doesn&#8217;t qualify for that &#8220;special&#8221; program. She belongs where she is. But she needs to be safe. Between this and Sarah Palin, I really do wonder &#8212; AM I ON AN EPISODE OF THE TWILIGHT ZONE???</p>
<p>Part of my coping mechanism &#8212; when faced with tough kid challenges and fear of the future of America &#8212; is to organize. Well, to try. I&#8217;ve already shown you pictures of my playroom, so I can&#8217;t pretend. I&#8217;ve had the stamp pad out a lot. I figure anything that can go in a Rubbermaid from Target is, somehow, containable and doable. I made a new bin for Sophie&#8217;s paperwork &#8212; and that&#8217;s just the stuff from the last couple months that needs to be filed.</p>
<p><img class="alignnone size-full wp-image-468" title="sophie-paper" src="http://girlinapartyhat.files.wordpress.com/2008/09/sophie-paper.jpg" alt="" /></p>
<p>So we&#8217;ll have this meeting tomorrow (which will generate even more paper for the SOPHIE PAPER bin) and we&#8217;ll talk about a lot of things and I&#8217;ll bring  up the aide and I&#8217;ll get shot down and that will pretty much be that, unless I decide to go all ball buster on them and I really don&#8217;t want to do that. I wish I believed in God so I could pray for Sophie&#8217;s safety, because at this point that&#8217;s my best bet.</p>
<p>And here&#8217;s the kicker: My ace in the hole did not pan out. A few weeks ago, I talked to a rather zealous but well-meaning former state legislator, who was horrified Sophie doesn&#8217;t get an aide. She insisted that Sophie&#8217;s got state dollars attached directly to her, because of her diagnosis, and that I simply need to play that card in the IEP meeting, to tell the group that I know how much extra money they&#8217;re getting for Sophie, and that they better spend it on her.</p>
<p>So I made the calls and the preliminary figures are in. I&#8217;m double checking, since this sounds so ridiculous even for the painfully backward state of Arizona, but if I&#8217;m right, here&#8217;s the extra amount of money dedicated to a kid like Sophie (a kid who qualifies as &#8220;mildly retarded,&#8221; boy I hate that term, I think I hate the word mild even more than the word retarded!), each year of public school:</p>
<p>Nine dollars.</p>
<p>That won&#8217;t even buy my Starbucks for a week.</p>
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