<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	>

<channel>
	<title>Girl in a Party Hat &#187; Down syndrome</title>
	<atom:link href="http://girlinapartyhat.com/index.php/tag/down-syndrome/feed/" rel="self" type="application/rss+xml" />
	<link>http://girlinapartyhat.com</link>
	<description>Girl in a Party Hat</description>
	<lastBuildDate>Fri, 30 Jul 2010 14:47:07 +0000</lastBuildDate>
	<language>en</language>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
	<generator>http://wordpress.org/?v=3.0</generator>
<xhtml:meta xmlns:xhtml="http://www.w3.org/1999/xhtml" name="robots" content="noindex" />
		<item>
		<title>Sophie&#8217;s Salad Years</title>
		<link>http://girlinapartyhat.com/index.php/2010/05/sophies-salad-years/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/05/sophies-salad-years/#comments</comments>
		<pubDate>Mon, 24 May 2010 23:57:22 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[birthday parties]]></category>
		<category><![CDATA[birthday party]]></category>
		<category><![CDATA[olivia birthday party]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2538</guid>
		<description><![CDATA[The party&#8217;s over. It was a good one. If I was one to nitpick, I&#8217;d say that there was not enough candy in the pinata, the music guys flopped (7 and 9 year olds are too old for &#8220;Five Little Monkeys&#8221;), the coffee was bad, and what was I thinking, skipping the adult beverages?! Minutes before guests [...]]]></description>
			<content:encoded><![CDATA[<p>The party&#8217;s over.</p>
<p>It was a good one. If I was one to nitpick, I&#8217;d say that there was not enough candy in the pinata, the music guys flopped (7 and 9 year olds are too old for &#8220;Five Little Monkeys&#8221;), the coffee was bad, and what was I thinking, skipping the adult beverages?!</p>
<p>Minutes before guests were set to arrive, as I was scurrying around ripping off wrappers and shoving flowers into jars, Annabelle eyed the pile of pink bakery boxes on the table and informed me in no uncertain terms that I should have made the cupcakes myself.</p>
<p>But otherwise, it was good. Sophie was happy. At one point, my friend Mrs. M. looked around and announced she&#8217;d never seen so many kids at a birthday party. It&#8217;s true. Sophie&#8217;s pretty popular. (Plus I invited a crapload of kids.) She was surrounded by friends as she whacked the pinata, got her face painted and ran around (and around and around) the house.</p>
<p>A couple of the girls from her class hugged her when the sparkler on her chocolate cupcake scared her a little as we all sang Happy Birthday.</p>
<p>It was a good day. But not a transcendent one. I didn&#8217;t get teary or philosophical. I simply threw a birthday party.</p>
<p>That&#8217;s more than okay.</p>
<p>The other day, Ray was talking about how cute and smart Sophie is and he stopped and sighed and announced, &#8220;Yeah, these are Sophie&#8217;s salad years.&#8221;</p>
<p>He&#8217;s right. By the time puberty hits &#8212; heck, maybe even by the time third grade hits &#8212; things will change for our &#8220;different&#8221; child. You know the drill. But for now, damnit, I&#8217;m going to enjoy it.</p>
<p>That said, I think that was the last free-for-all party. None of the real mayhem was captured on film, so you&#8217;ll have to take my word for it: There was mayhem. Toward the end, during the opening of an insane amount of presents, Ms. X (pictured below with the birthday girl) caught my eye, nodded wisely and said, &#8220;Maybe this should be the last one like <em>this</em>.&#8221;</p>
<p>I agree completely. At least, today I do. Remind me in 45 or weeks, or so, when I&#8217;m in the thick of party planning.</p>
<p>Here are a few pictures.</p>
<p><a href="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday1.jpg"><img class="alignnone size-full wp-image-2539" title="bday1" src="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday1.jpg" alt="" /></a></p>
<p><a href="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday2.jpg"><img class="alignnone size-full wp-image-2540" title="bday2" src="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday2.jpg" alt="" /></a></p>
<p><a href="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday3.jpg"><img class="alignnone size-full wp-image-2541" title="bday3" src="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday3.jpg" alt="" /></a></p>
<p><a href="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday4.jpg"><img class="alignnone size-full wp-image-2542" title="bday4" src="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday4.jpg" alt="" /></a></p>
<p><a href="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday51.jpg"><img class="alignnone size-full wp-image-2544" title="bday5" src="http://girlinapartyhat.com/wp-content/uploads/2010/05/bday51.jpg" alt="" /></a></p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F05%2Fsophies-salad-years%2F&amp;title=Sophie%27s%20Salad%20Years&amp;notes=The%20party%27s%20over.%0D%0A%0D%0AIt%20was%20a%20good%20one.%20If%20I%C2%A0was%20one%20to%20nitpick%2C%20I%27d%20say%20that%20there%20was%20not%20enough%20candy%20in%20the%20pinata%2C%20the%20music%20guys%20flopped%20%287%20and%209%20year%20olds%20are%20too%20old%20for%20%22Five%20Little%20Monkeys%22%29%2C%20the%20coffee%20was%20bad%2C%C2%A0and%20what%20was%20I%20thinking%2C%20s" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F05%2Fsophies-salad-years%2F&amp;t=Sophie%27s%20Salad%20Years" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F05%2Fsophies-salad-years%2F&amp;title=Sophie%27s%20Salad%20Years&amp;annotation=The%20party%27s%20over.%0D%0A%0D%0AIt%20was%20a%20good%20one.%20If%20I%C2%A0was%20one%20to%20nitpick%2C%20I%27d%20say%20that%20there%20was%20not%20enough%20candy%20in%20the%20pinata%2C%20the%20music%20guys%20flopped%20%287%20and%209%20year%20olds%20are%20too%20old%20for%20%22Five%20Little%20Monkeys%22%29%2C%20the%20coffee%20was%20bad%2C%C2%A0and%20what%20was%20I%20thinking%2C%20s" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Sophie%27s%20Salad%20Years%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F05%2Fsophies-salad-years%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2010/05/sophies-salad-years/feed/</wfw:commentRss>
		<slash:comments>6</slash:comments>
		</item>
		<item>
		<title>Sophie asked, &#8220;Can I be a teacher when I grow up?&#8221;</title>
		<link>http://girlinapartyhat.com/index.php/2010/04/sophie-asked-can-i-be-a-teacher-when-i-grow-up/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/04/sophie-asked-can-i-be-a-teacher-when-i-grow-up/#comments</comments>
		<pubDate>Tue, 20 Apr 2010 00:38:36 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[the future]]></category>
		<category><![CDATA[career opportunities for people with down syndrome]]></category>
		<category><![CDATA[Down syndrome]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2448</guid>
		<description><![CDATA[When I was almost 7, I had all sorts of ideas as to what I wanted to be when I grew up. Most of the time I wanted to be a poet. I was reminded of that ridiculous notion for the gazillionth time this morning as I listened to some particularly fantastic poetry on &#8220;Morning Edition&#8221; [...]]]></description>
			<content:encoded><![CDATA[<p>When I was almost 7, I had all sorts of ideas as to what I wanted to be when I grew up. Most of the time I wanted to be a poet. I was reminded of that ridiculous notion for the gazillionth time this morning as I listened to some particularly fantastic poetry on &#8220;Morning Edition&#8221; in honor of National Poetry Month.</p>
<p>You know, I thought to myself as I cracked open the first Diet Coke of the morning and washed down a Claritin-D and a multi-vitamin, it&#8217;s really really easy to write bad poetry and really really hard to write good poetry.</p>
<p>That is not my point here. My point is this. No one told me when I was almost 7 that there was no way I was going to end up as a poet, no matter how hard I tried. No one set any such limitations &#8212; not my parents, my teachers or society.</p>
<p>When you are almost 7, the possibilities are pretty endless.</p>
<p>Enter Sophie. She&#8217;s almost 7. It&#8217;s been a while since she&#8217;s talked about what she wants to be when she grows up, but suddenly, it&#8217;s back as a topic of conversation.</p>
<p>Mostly, Sophie wants to be a veterniarian. But the other day she announced, &#8220;I be a mother when I grow up!&#8221;</p>
<p>That, for obvious reasons, is the biggest heartbreaker of all for me, although I do maintain that I&#8217;ll do everything in my power (well, you know what I mean) to make sure that at the very least, Sophie falls in love and has great sex.</p>
<p>The girls had just settled into their booster seats in the car this morning, when &#8212; probably motivated by the strong desire to own the large rainbow pack of dry-erase markers we were bringing to Ms. Y &#8212; Sophie asked, &#8220;Can I be a teacher when I grow up?&#8221;</p>
<p>&#8220;Of course!&#8221; replied Annabelle, whose own list currently includes fashion designer, ballerina, actress, writer and scientist. &#8220;You can be anything you want to be, Sophie!&#8221;</p>
<p>I didn&#8217;t say a word.</p>
<p>But it did occur to me, as I backed out of the driveway and we headed off into the day, that Sophie is already quite a teacher.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fsophie-asked-can-i-be-a-teacher-when-i-grow-up%2F&amp;title=Sophie%20asked%2C%20%22Can%20I%20be%20a%20teacher%20when%20I%20grow%20up%3F%22&amp;notes=When%20I%20was%20almost%C2%A07%2C%20I%20had%20all%20sorts%20of%20ideas%20as%20to%20what%20I%20wanted%20to%20be%20when%20I%20grew%20up.%20Most%20of%20the%20time%20I%20wanted%20to%20be%20a%20poet.%20I%20was%20reminded%20of%20that%20ridiculous%20notion%20for%20the%20gazillionth%20time%20this%20morning%20as%20I%20listened%20to%20some%20particularly%20fantast" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fsophie-asked-can-i-be-a-teacher-when-i-grow-up%2F&amp;t=Sophie%20asked%2C%20%22Can%20I%20be%20a%20teacher%20when%20I%20grow%20up%3F%22" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fsophie-asked-can-i-be-a-teacher-when-i-grow-up%2F&amp;title=Sophie%20asked%2C%20%22Can%20I%20be%20a%20teacher%20when%20I%20grow%20up%3F%22&amp;annotation=When%20I%20was%20almost%C2%A07%2C%20I%20had%20all%20sorts%20of%20ideas%20as%20to%20what%20I%20wanted%20to%20be%20when%20I%20grew%20up.%20Most%20of%20the%20time%20I%20wanted%20to%20be%20a%20poet.%20I%20was%20reminded%20of%20that%20ridiculous%20notion%20for%20the%20gazillionth%20time%20this%20morning%20as%20I%20listened%20to%20some%20particularly%20fantast" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Sophie%20asked%2C%20%22Can%20I%20be%20a%20teacher%20when%20I%20grow%20up%3F%22%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fsophie-asked-can-i-be-a-teacher-when-i-grow-up%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2010/04/sophie-asked-can-i-be-a-teacher-when-i-grow-up/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>The Melt-in-Your-Hand IEP</title>
		<link>http://girlinapartyhat.com/index.php/2010/04/the-iep-that-melted-in-my-hand/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/04/the-iep-that-melted-in-my-hand/#comments</comments>
		<pubDate>Fri, 16 Apr 2010 19:53:33 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[public school]]></category>
		<category><![CDATA[candy as reward]]></category>
		<category><![CDATA[IEP]]></category>
		<category><![CDATA[special education]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2445</guid>
		<description><![CDATA[Sophie&#8217;s IEP meeting was last week, and we&#8217;re still in the throes of finalizing/reviewing/sign-seal-and-delivering, but things seem to be falling into place. It&#8217;s such a detailed process, designed to address every possible angle of your kid and her needs, but really what I find is that it lulls you (or me, anyway) into a false [...]]]></description>
			<content:encoded><![CDATA[<p>Sophie&#8217;s IEP meeting was <a href="http://girlinapartyhat.com/index.php/2010/04/no-day-but-today/">last week</a>, and we&#8217;re still in the throes of finalizing/reviewing/sign-seal-and-delivering, but things seem to be falling into place.</p>
<p>It&#8217;s such a detailed process, designed to address every possible angle of your kid and her needs, but really what I find is that it lulls you (or me, anyway) into a false sense of security.</p>
<p>Consider the following.</p>
<p>The meeting was Friday. Monday (ok, it might have been Tuesday) evening we were winding down, discussing the day&#8217;s highlights, and Sophie informed me that she had eaten some M&amp;Ms.</p>
<p>&#8220;Yum yum!&#8221; she announced, pantomiming the act of the gobble. I was curious.</p>
<p>&#8220;Where&#8217;d you get those?&#8221;</p>
<p>She mentioned the name of the special ed teacher at school. Upon further discussion, it became clear that Sophie had behaved well during a session, and was rewarded with what I&#8217;m guessing was one or two M&amp;Ms.</p>
<p>Really, no big deal. Except that we spent a long time in that IEP meeting just days before talking about various reward systems &#8212; that the Elmo chart (which became a Christmas chart, then a Foofa from Yo Gabba Gabba chart) had fallen by the wayside, that sometimes it worked to hold onto Sophie&#8217;s favorite self-soothing paintbrush during a session and give it to her at the end in honor of a job well done.</p>
<p>No one mentioned M&amp;Ms. I&#8217;m sure that&#8217;s because there are all sorts of food rules at school these days. I&#8217;m all in favor of that. If I&#8217;m going to let my kid have junk food, I want to be in control of it. That said, I really don&#8217;t care about occasional treats. (This is a whole other discussion for another day, but I think it&#8217;s a bad idea to never let your kid have treats; it only makes her obsessed with getting them. I should know.)</p>
<p>But not as a reward for good behavior. Not from the special ed teacher, who of all people has been trained (I thought) to come up with better methods to ensure good behavior.</p>
<p>And not, for crying out loud, for a kid with Down syndrome. Sophie&#8217;s pretty lithe at the moment, but I&#8217;d like to keep it that way, and sadly, she&#8217;s genetically programmed for plumpness.</p>
<p>Most of all, I was annoyed at the timing &#8212; that Sophie mentioned the M&amp;M thing just days after the IEP meeting. A good reminder, I suppose, that an IEP is pretty much worth the paper it&#8217;s printed on.</p>
<p>I do love Sophie&#8217;s teacher, Ms. Y; she  has quite a way with words. When I mentioned the M&amp;M thing in an email, she responded that &#8220;non-culinary&#8221; reward options would immediately be explored.</p>
<p>In fact, the special ed teacher reported yesterday, that will be written into the IEP.</p>
<p>Great.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fthe-iep-that-melted-in-my-hand%2F&amp;title=The%20Melt-in-Your-Hand%20IEP&amp;notes=Sophie%27s%20IEP%20meeting%20was%20last%20week%2C%20and%20we%27re%20still%20in%20the%20throes%20of%20finalizing%2Freviewing%2Fsign-seal-and-delivering%2C%20but%20things%20seem%20to%20be%20falling%20into%20place.%0D%0A%0D%0AIt%27s%20such%20a%20detailed%20process%2C%20designed%20to%20address%20every%20possible%20angle%20of%20your%20kid%20and%20he" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fthe-iep-that-melted-in-my-hand%2F&amp;t=The%20Melt-in-Your-Hand%20IEP" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fthe-iep-that-melted-in-my-hand%2F&amp;title=The%20Melt-in-Your-Hand%20IEP&amp;annotation=Sophie%27s%20IEP%20meeting%20was%20last%20week%2C%20and%20we%27re%20still%20in%20the%20throes%20of%20finalizing%2Freviewing%2Fsign-seal-and-delivering%2C%20but%20things%20seem%20to%20be%20falling%20into%20place.%0D%0A%0D%0AIt%27s%20such%20a%20detailed%20process%2C%20designed%20to%20address%20every%20possible%20angle%20of%20your%20kid%20and%20he" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=The%20Melt-in-Your-Hand%20IEP%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F04%2Fthe-iep-that-melted-in-my-hand%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2010/04/the-iep-that-melted-in-my-hand/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>Call Me Mrs. Waterworks</title>
		<link>http://girlinapartyhat.com/index.php/2010/03/call-me-mrs-waterworks/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/03/call-me-mrs-waterworks/#comments</comments>
		<pubDate>Mon, 08 Mar 2010 21:57:45 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[my name is sarah]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2334</guid>
		<description><![CDATA[Oh my. I know I just gushed about Sarah last week, but you must check out this post from her mom, Joyce, on a rather auspicious occasion this past Saturday. As I commented to Joyce, reading this made my day/week/year! Try to read it without going a little waterworks yourself. Share:]]></description>
			<content:encoded><![CDATA[<p>Oh my. I know I just gushed about Sarah last week, but you must check out <a href="http://sarahely8989.blogspot.com/2010/03/psstlate-breaking-news.html">this post</a> from her mom, Joyce, on a rather auspicious occasion this past Saturday.</p>
<p>As I commented to Joyce, reading this made my day/week/year! Try to read it without going a little waterworks yourself.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F03%2Fcall-me-mrs-waterworks%2F&amp;title=Call%20Me%20Mrs.%20Waterworks&amp;notes=Oh%20my.%20I%20know%20I%20just%20gushed%20about%20Sarah%20last%20week%2C%20but%20you%20must%20check%20out%20this%20post%20from%20her%20mom%2C%20Joyce%2C%20on%20a%20rather%20auspicious%20occasion%20this%20past%20Saturday.%0D%0A%0D%0AAs%20I%20commented%20to%20Joyce%2C%20reading%20this%20made%20my%20day%2Fweek%2Fyear%21%20Try%20to%20read%20it%20without%20going%20" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F03%2Fcall-me-mrs-waterworks%2F&amp;t=Call%20Me%20Mrs.%20Waterworks" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F03%2Fcall-me-mrs-waterworks%2F&amp;title=Call%20Me%20Mrs.%20Waterworks&amp;annotation=Oh%20my.%20I%20know%20I%20just%20gushed%20about%20Sarah%20last%20week%2C%20but%20you%20must%20check%20out%20this%20post%20from%20her%20mom%2C%20Joyce%2C%20on%20a%20rather%20auspicious%20occasion%20this%20past%20Saturday.%0D%0A%0D%0AAs%20I%20commented%20to%20Joyce%2C%20reading%20this%20made%20my%20day%2Fweek%2Fyear%21%20Try%20to%20read%20it%20without%20going%20" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Call%20Me%20Mrs.%20Waterworks%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F03%2Fcall-me-mrs-waterworks%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2010/03/call-me-mrs-waterworks/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Ghost Story</title>
		<link>http://girlinapartyhat.com/index.php/2010/02/ghost-story/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/02/ghost-story/#comments</comments>
		<pubDate>Mon, 01 Feb 2010 23:42:04 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[health]]></category>
		<category><![CDATA[cranial technology]]></category>
		<category><![CDATA[doc band]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Laurie Notaro]]></category>
		<category><![CDATA[spooky little girl]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2221</guid>
		<description><![CDATA[Maybe it was because I was reading a ghost story at the time (specifically, &#8220;Spooky Little Girl&#8221; &#8211; the latest book by my dear friend, the prolific and hilarious Laurie Notaro &#8212; it&#8217;ll be out in April) or maybe it&#8217;s just because I scare easily. But I literally jumped and squealed when I looked inside a blue plastic bag shoved [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-2222" title="helmet1" src="http://girlinapartyhat.com/wp-content/uploads/2010/02/helmet1.jpg" alt="helmet1" /></p>
<p>Maybe it was because I was reading a ghost story at the time (specifically, &#8220;Spooky Little Girl&#8221; &#8211; the latest book by my dear friend, the prolific and hilarious Laurie Notaro &#8212; it&#8217;ll be out in April) or maybe it&#8217;s just because I scare easily.</p>
<p>But I literally jumped and squealed when I looked inside a blue plastic bag shoved in the back of a cabinet and found Sophie&#8217;s head.</p>
<p>When Sophie was three months old, we finally had our appointment with the geneticist, the guy who was supposed to impart all kinds of knowledge but really didn&#8217;t tell us anything Ray hadn&#8217;t already researched himself about Down syndrome.</p>
<p>As we were leaving his office, the geneticist pointed to the rather-flat back of Sophie&#8217;s head and warned, &#8220;You better do something about that head soon!&#8221;</p>
<p>Looking back, I can&#8217;t believe I listened to him. But I did. We got her one of those $5,000-not-covered-by-insurance helmets to round out her flat head. And turns out, I&#8217;ve still got the helmet &#8212; and the mold they made of Sophie&#8217;s head &#8212; to prove it.</p>
<p>I&#8217;m not knocking those helmets. One of my writers did a <a href="http://www.phoenixnewtimes.com/2005-05-05/news/head-games&amp;page=34">terrific story </a>about DOC bands  &#8211; they were invented here in Arizona, and have saved many children with serious cranial deformities from expensive and dangerous surgery.</p>
<p>But I&#8217;m not sure Sophie really needed the helmet at all. Which is a good thing, since it didn&#8217;t do much for her. To be fair to the folks who sold it to us, she didn&#8217;t wear it constantly, as required. Poor baby Sophie quickly rubbed herself a huge &#8220;hot spot&#8221; (yes, like the kind dogs get &#8212; looked just like that) on her head, and couldn&#8217;t wear the helmet much at all.</p>
<p>In a way, I was flattered when the geneticist told us to fix her head &#8212; even though at the time we were days away from open-heart surgery, and clearly had bigger fish to fry. To me, it meant Sophie was worth something, that it wasn&#8217;t okay to let her walk around with a flat head.</p>
<p>Today, when we&#8217;re cuddling, and I feel that flat spot on the back of her skull &#8212; I don&#8217;t think you can see it at all with her hair over it, at least I don&#8217;t notice it &#8212; I wince, hating that I gave her even a moment&#8217;s discomfort with that dumb helmet.</p>
<p>And yet, I couldn&#8217;t just throw the thing away. Sophie was fascinating with my find &#8212; and played with the DOC band for a while. Then I shoved the mold and the helmet back in the blue bag and hid it away high in her closet. Not a bad ghost to have to confront once in a while, I figure.   </p>
<p><img class="alignnone size-full wp-image-2223" title="helmet2" src="http://girlinapartyhat.com/wp-content/uploads/2010/02/helmet2.jpg" alt="helmet2" /></p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F02%2Fghost-story%2F&amp;title=Ghost%20Story&amp;notes=%0D%0A%0D%0AMaybe%20it%20was%20because%20I%20was%20reading%20a%20ghost%20story%20at%20the%20time%C2%A0%28specifically%2C%20%22Spooky%20Little%20Girl%22%C2%A0--%20the%20latest%20book%20by%C2%A0my%20dear%20friend%2C%20the%20prolific%20and%20hilarious%C2%A0Laurie%20Notaro%20--%20it%27ll%20be%20out%20in%20April%29%20or%20maybe%20it%27s%20just%20because%20I%20scare%20easil" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F02%2Fghost-story%2F&amp;t=Ghost%20Story" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F02%2Fghost-story%2F&amp;title=Ghost%20Story&amp;annotation=%0D%0A%0D%0AMaybe%20it%20was%20because%20I%20was%20reading%20a%20ghost%20story%20at%20the%20time%C2%A0%28specifically%2C%20%22Spooky%20Little%20Girl%22%C2%A0--%20the%20latest%20book%20by%C2%A0my%20dear%20friend%2C%20the%20prolific%20and%20hilarious%C2%A0Laurie%20Notaro%20--%20it%27ll%20be%20out%20in%20April%29%20or%20maybe%20it%27s%20just%20because%20I%20scare%20easil" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Ghost%20Story%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2010%2F02%2Fghost-story%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2010/02/ghost-story/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>The Mystery of the Wandering Kid</title>
		<link>http://girlinapartyhat.com/index.php/2009/09/the-mystery-of-the-wandering-kid/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/09/the-mystery-of-the-wandering-kid/#comments</comments>
		<pubDate>Fri, 25 Sep 2009 12:11:06 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[first grade]]></category>
		<category><![CDATA[wandering from classroom]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=1870</guid>
		<description><![CDATA[I can&#8217;t sleep. Yesterday morning was pretty typical &#8212; we scurried to get ready, scurried out the door, scurried out of the car into backpacks and lunch boxes and over the crosswalk to school. When Sophie, Annabelle and I arrived, it was the typical rush of teachers opening doors in the carpool lane (it always [...]]]></description>
			<content:encoded><![CDATA[<p>I can&#8217;t sleep.</p>
<p>Yesterday morning was pretty typical &#8212; we scurried to get ready, scurried out the door, scurried out of the car into backpacks and lunch boxes and over the crosswalk to school.</p>
<p>When Sophie, Annabelle and I arrived, it was the typical rush of teachers opening doors in the carpool lane (it always reminds me so much of a valet service) and kids flowing onto the playground.</p>
<p>We all stopped to say hello to Annabelle&#8217;s teacher, who gave us her usual big, happy greeting. Sophie said to her, &#8220;I come to your classroom!&#8221;</p>
<p>At first I didn&#8217;t give that much thought, standing there, because Sophie&#8217;s been saying that since the first day of school and we&#8217;ve always laughed about it. She doesn&#8217;t have easy access to Annabelle&#8217;s classroom. It&#8217;s on another floor, a gigantic (for Sophie) staircase away.</p>
<p>But something compelled me to look up from Sophie&#8217;s face to the teacher&#8217;s.</p>
<p>&#8220;Um, Sophie hasn&#8217;t actually shown up in your classroom, has she?&#8221;</p>
<p>&#8220;Why, yes!&#8221; the teacher responded cheerily. &#8220;Just yesterday!&#8221;</p>
<p>The craze of arriving kids continued through this discussion, so I couldn&#8217;t get much out of her, except that Sophie had shown up and a friend of Annabelle&#8217;s had escorted her back down the stairs to class.</p>
<p>When the bell rang, and Miss Y appeared to usher in her line, I broke the Cardinal rule. I brought up a Big Subject in the before-school rush.</p>
<p>&#8220;Hey, did you hear that Sophie showed up in Annabelle&#8217;s teacher&#8217;s room yesterday?&#8221; I asked, trying to sound casual.</p>
<p>&#8220;Noooooooooo,&#8221; she replied, clearly replaying the past day in her head even as she grabbed for hands and secured packs on backs.</p>
<p>She stopped and looked at me.</p>
<p>&#8220;Really?&#8221;</p>
<p>By day&#8217;s end, when we corresponded on email, she had asked for but not received details of the journey. There was speculation that this might have taken place during a therapy session or maybe music, since Miss Y never knew it happened.</p>
<p>I suppose it was a good week for this. In a couple hours, I&#8217;ll drive over to school for that one-month meeting of Sophie&#8217;s IEP team, which is finally to take place. And I&#8217;ll bring this up.</p>
<p>But first I&#8217;m going to let them all go around the room and talk about how incredibly well Sophie is doing, how this is the best possible setting for her, how her academics and socialization are through the roof (even if they really aren&#8217;t &#8212; I notice how eager people are to tell me how well Sophie is doing, and how eager I am to accept that news; events like yesterday&#8217;s are a wake-up call from the complacency that sets in) and when they&#8217;re done, I&#8217;ll pipe up.</p>
<p>And maybe, just maybe, if she&#8217;s at this meeting, the principal won&#8217;t turn to me, wince, and say what she said last year at this meeting, when I asked if we could write a provision into her IEP to have someone walk Sophie from the cafeteria to the playground at lunch each day.</p>
<p><em>You  know, if Sophie needs to be treated like someone other than a typical kid, the principal said, you will need to look at options elsewhere in the district.</em></p>
<p>Maybe there&#8217;s a simple explanation for the wandering. It&#8217;s true, Sophie was fine &#8212; people know and love her at this school, they want to take care of her. I just wish that when I&#8217;d asked Miss Y about it, she&#8217;d had a ready explanation. I know she does, too. She takes this as seriously as I do.</p>
<p>Honestly, the seriousness of it didn&#8217;t really sink in til I called my mom last night, to recount the events of the day, and mentioned it almost as an aside. She was horrified, speechless (rare for her). We hung up and 20 minutes later, I was in Safeway, and the phone rang again. What can we do about this? she asked.</p>
<p>I honestly don&#8217;t know. I&#8217;m back to thinking Sophie needs a micro chip or a tattoo or at least a tag that says, &#8220;If lost, please return to:&#8221;</p>
<p>Or maybe I&#8217;m just exhausted.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fthe-mystery-of-the-wandering-kid%2F&amp;title=The%20Mystery%20of%20the%20Wandering%20Kid&amp;notes=I%20can%27t%20sleep.%0D%0A%0D%0AYesterday%20morning%20was%20pretty%20typical%20--%20we%20scurried%20to%20get%20ready%2C%20scurried%20out%20the%20door%2C%20scurried%20out%20of%20the%20car%20into%20backpacks%20and%20lunch%20boxes%20and%20over%20the%20crosswalk%20to%20school.%0D%0A%0D%0AWhen%20Sophie%2C%20Annabelle%20and%20I%20arrived%2C%20it%20was%20the%20ty" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fthe-mystery-of-the-wandering-kid%2F&amp;t=The%20Mystery%20of%20the%20Wandering%20Kid" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fthe-mystery-of-the-wandering-kid%2F&amp;title=The%20Mystery%20of%20the%20Wandering%20Kid&amp;annotation=I%20can%27t%20sleep.%0D%0A%0D%0AYesterday%20morning%20was%20pretty%20typical%20--%20we%20scurried%20to%20get%20ready%2C%20scurried%20out%20the%20door%2C%20scurried%20out%20of%20the%20car%20into%20backpacks%20and%20lunch%20boxes%20and%20over%20the%20crosswalk%20to%20school.%0D%0A%0D%0AWhen%20Sophie%2C%20Annabelle%20and%20I%20arrived%2C%20it%20was%20the%20ty" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=The%20Mystery%20of%20the%20Wandering%20Kid%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fthe-mystery-of-the-wandering-kid%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2009/09/the-mystery-of-the-wandering-kid/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Young Soul, Old Soul</title>
		<link>http://girlinapartyhat.com/index.php/2009/09/young-soul-old-soul/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/09/young-soul-old-soul/#comments</comments>
		<pubDate>Fri, 11 Sep 2009 17:57:45 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Pets]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[telling kids about putting a pet to sleep]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=1811</guid>
		<description><![CDATA[Here&#8217;s how it went down Wednesday night. You&#8217;ll have to forgive me, some details may be a bit askew, but this is basically what happened. &#8220;Hey girls, come into the living room and sit down for a minute,&#8221; I said. Annabelle looked at me suspiciously. &#8220;Is this about Rosy?&#8221; &#8220;It is, sweetie.&#8221; She squeezed out [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-1813" title="rosy flower" src="http://girlinapartyhat.com/wp-content/uploads/2009/09/rosy-flower.jpg" alt="rosy flower" /></p>
<p>Here&#8217;s how it went down Wednesday night. You&#8217;ll have to forgive me, some details may be a bit askew, but this is basically what happened.</p>
<p>&#8220;Hey girls, come into the living room and sit down for a minute,&#8221; I said.</p>
<p>Annabelle looked at me suspiciously.</p>
<p>&#8220;Is this about Rosy?&#8221;</p>
<p>&#8220;It is, sweetie.&#8221;</p>
<p>She squeezed out a few tears before I could say anything. I explained that Rosy was very, very old, and didn&#8217;t feel well anymore. The next day, I was going to take Rosy to the vet and the doctor would give her a shot. The shot wouldn&#8217;t hurt, but it would put Rosy to sleep. And she wouldn&#8217;t wake up.</p>
<p>More tears from Annabelle. And from me.</p>
<p>Sophie, who hadn&#8217;t seemed to be paying attention, stood up and said, &#8220;Rosy go to sleep! Cock a doodle doo! The rooster! She wake up! She be all better now!&#8221;</p>
<p>I took her on my lap. &#8220;No, Sophie,&#8221; I said, trying to be a little firm. &#8220;Rosy is not going to wake up.&#8221;</p>
<p>But she didn&#8217;t get it. I decided that was okay. I explained to both girls that Ray and I wanted them to know what was going to happen so they could say their extra-special good byes to Rosy. I tried to explain to Annabelle that dogs can&#8217;t make their own decisions &#8212; that we have to do what we think is best for them. That it&#8217;s our responsibility. And that we didn&#8217;t want Rosy to have one bad day.</p>
<p>We pretty much went about the business of the evening after that. I put out some frozen hamburger to thaw for a Last Supper the next morning.</p>
<p>Just before bed, Annabelle approached me in the kitchen and told me she was going to make Rosy a paper flower (see above). And then she told me something else.</p>
<p>&#8220;You know what, Mommy? I&#8217;m not going to be sad about Rosy dying because she&#8217;s had a good long life.&#8221;</p>
<p>I smiled and hugged Annabelle, feeling melancholy. I worry that Annabelle has been through too much already, at 8 &#8212; a sister with a disability and a heart condition; a beloved grandmother dying far too young. A couple months ago, Annabelle was the one who found Izzy, the ancient Cornish Rex cat, curled up asleep &#8212; dead. Even that she handled with grace I find hard to muster at 42.</p>
<p>Annabelle&#8217;s got an old soul. Has  her life aged it prematurely? Or would she always have been this way?</p>
<p>Sophie I don&#8217;t worry about, not like that. Her soul is so young. She woke up this morning and asked where Rosy was, and while I think she knew what I&#8217;d say, I don&#8217;t think she had any idea what that meant. Sophie is barreling through life and at times my greatest wish for her, as I&#8217;ve written so many times, is that she doesn&#8217;t grasp the situation at hand.</p>
<p>Like the other day before school. She spied two girls from her kindergarten class, literally walking arm in arm. One I don&#8217;t honestly expect much from. She&#8217;s an okay kid, but never has paid much attention to Sophie. The other has been a dear friend to Sophie, seeking her out and taking her hand when it&#8217;s time to walk to class, helping her with classroom tasks.</p>
<p>But this particular morning she was with her pal, and when Sophie approached and got right in their faces, singing a song they didn&#8217;t recognize, the sweet girl looked exasperated.</p>
<p>&#8220;Sophie, why are you doing that?&#8221; she asked, then the two turned and walked off, with all the panache of Lindsay Lohan. I winced. I couldn&#8217;t blame them &#8212; they&#8217;re 6, and Sophie <em>was</em> being annoying.</p>
<p>Still, it smarted. (Funny, that word &#8212; smarted. Don&#8217;tcha think?) Sophie lacks the wherewithall (at this point, anyway) to recognize such a slight. And she lacks the social graces to approach friends the right way. Somewhere in the middle of the two, though, I fear as always that she knows exactly what&#8217;s going on, but doesn&#8217;t know how to fix it.</p>
<p>I don&#8217;t know how to fix it, either. That day, I distracted her til she spotted another friend who was willing to hang with her.</p>
<p>I worry that even if she doesn&#8217;t quite grasp them, situations like that will leave an indelible mark on Sophie&#8217;s young, impressionable soul.</p>
<p>And I worry that Annabelle&#8217;s soul is already starting to harden &#8212; just a little.</p>
<p>Mostly, I just worry. They are both my sweet, sweet girls. And unlike my sweet girl Rosy, sometimes there will be nothing I can do to keep them from having a bad day.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fyoung-soul-old-soul%2F&amp;title=Young%20Soul%2C%20Old%20Soul&amp;notes=%0D%0A%0D%0AHere%27s%20how%20it%20went%20down%20Wednesday%20night.%20You%27ll%20have%20to%20forgive%20me%2C%20some%20details%20may%20be%20a%20bit%20askew%2C%20but%20this%20is%20basically%20what%20happened.%0D%0A%0D%0A%22Hey%20girls%2C%20come%20into%20the%20living%20room%20and%20sit%20down%20for%20a%20minute%2C%22%20I%20said.%0D%0A%0D%0AAnnabelle%20looked%20at%20me%20suspi" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fyoung-soul-old-soul%2F&amp;t=Young%20Soul%2C%20Old%20Soul" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fyoung-soul-old-soul%2F&amp;title=Young%20Soul%2C%20Old%20Soul&amp;annotation=%0D%0A%0D%0AHere%27s%20how%20it%20went%20down%20Wednesday%20night.%20You%27ll%20have%20to%20forgive%20me%2C%20some%20details%20may%20be%20a%20bit%20askew%2C%20but%20this%20is%20basically%20what%20happened.%0D%0A%0D%0A%22Hey%20girls%2C%20come%20into%20the%20living%20room%20and%20sit%20down%20for%20a%20minute%2C%22%20I%20said.%0D%0A%0D%0AAnnabelle%20looked%20at%20me%20suspi" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Young%20Soul%2C%20Old%20Soul%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F09%2Fyoung-soul-old-soul%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2009/09/young-soul-old-soul/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Another Ghost Story</title>
		<link>http://girlinapartyhat.com/index.php/2009/07/another-ghost-story/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/07/another-ghost-story/#comments</comments>
		<pubDate>Mon, 20 Jul 2009 04:44:02 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Down syndrome]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=1654</guid>
		<description><![CDATA[For someone with no formal belief in any sort of organized anything, without real faith in anything except the power of a Diet Coke first thing in the morning, I certainly see a lot of signs. Signs of what, I don&#8217;t know. Maybe by definition, that means they&#8217;re not signs at all. You tell me. [...]]]></description>
			<content:encoded><![CDATA[<p>For someone with no formal belief in any sort of organized anything, without real faith in anything except the power of a Diet Coke first thing in the morning, I certainly see a lot of signs.</p>
<p>Signs of what, I don&#8217;t know. Maybe by definition, that means they&#8217;re not signs at all. You tell me. I will recall the latest &#8212; including my reaction, for the purposes of being completely honest.</p>
<p>Probably it&#8217;s just the latest sign that I&#8217;m an asshole.</p>
<p>The second or third night of our beach vacation, a few of us loitered on the walk back from dinner to the hotel. Annabelle had gone to Sea World with my sister and her family; my parents were already on the couch. My dear friend Trish and her son Zach, who is 16, were in town and we&#8217;d eaten together. Trish had Sophie on her hip as we headed back.</p>
<p>Funny, I hadn&#8217;t noticed how much shabbier than chic the little strip of retail on La Jolla&#8217;s north shore has become over the years we&#8217;ve been staying there &#8212; the ancient surf shops, the coffee joint that changes owners every two or three years, the grungy market. I love it all, even the tiny nail salon too dirty looking to dream of stepping foot in. Except it was gone this year, replaced by a gleaming, colorful, weigh-your-own frozen yogurt shop &#8212; the kind that are popping up all over Phoenix. Sophie&#8217;s favorite.</p>
<p>We stopped for chocolate with no toppings for her and a little something for everyone else, ate it there, and started back to the room in the dark. The sidewalk is narrow a block from the beach, sandy and slippery and people scoot around a party as slow as ours. We didn&#8217;t notice; Sophie was loudly singing her ABCs &#8212; doing a fine job, I thought, til a middle-aged woman passed us and called out, &#8220;Hey, she missed the H!&#8221; I responded, &#8220;At least it wasn&#8217;t the P!&#8221; (Sorry, old joke.)</p>
<p>Really, a trivial moment if ever there was one.</p>
<p>Immediately after, from the pitch black, a figure emerged. At first, all I could see was that the person was rather big, wearing all white &#8212; white shirt, white shorts, white shoes &#8212; and bounding toward us. Galloping, sort of. It was a girl, I could finally tell, with a dark brown pageboy and, I realized, features not unlike Sophie&#8217;s. </p>
<p>We stopped to let the girl pass us; she was gone as quickly as she&#8217;d appeared.</p>
<p>If I&#8217;d been with anyone else, I&#8217;m not sure I would have said a word. But it was Trish. We have a lot of history &#8211; most recently, two months ago, at the girls&#8217; dance recital, when right before the show was to begin, we had <a href="http://girlinapartyhat.wordpress.com/2009/05/10/ghost-of-the-future/">an encounter </a>with another person with Down syndrome.  </p>
<p>I don&#8217;t think Zach and Sophie noticed a thing. But Trish and I stood there, staring first after the girl, then at each other. And we did the mature thing. We burst out laughing. To be fair, Trish had had two beers and I&#8217;d had some kind of vodka lemonade thing, but still. One of us even wet her pants, but I&#8217;m not saying who.</p>
<p>Zach demanded an explanation as to why we were laughing. Trish tried. She said it was the look on my face when the girl ran by. But there was no way to explain it. Definitely not to a 16-year-old boy, who looked increasingly disgusted with us.</p>
<p>And perhaps not to you, either. Or maybe you get it. I still can&#8217;t explain why I laughed, except to say I was uncomfortable, and also saying to Trish, &#8220;SEE? SEE? IT KEEPS HAPPENING.&#8221; </p>
<p>Was the figure in white another ghost of my future? Or am I looking for signs where there are only young girls, chasing after their own families &#8212; or maybe even their dreams.</p>
<p>Or maybe she was just on her way to get some frozen yogurt.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fanother-ghost-story%2F&amp;title=Another%20Ghost%20Story&amp;notes=For%20someone%20with%20no%20formal%20belief%20in%20any%20sort%20of%20organized%20anything%2C%20without%20real%20faith%20in%20anything%20except%20the%20power%20of%20a%20Diet%20Coke%20first%20thing%20in%20the%20morning%2C%20I%20certainly%20see%20a%20lot%20of%20signs.%0D%0A%0D%0ASigns%20of%20what%2C%20I%20don%27t%20know.%20Maybe%20by%20definition%2C%20that%20" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fanother-ghost-story%2F&amp;t=Another%20Ghost%20Story" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fanother-ghost-story%2F&amp;title=Another%20Ghost%20Story&amp;annotation=For%20someone%20with%20no%20formal%20belief%20in%20any%20sort%20of%20organized%20anything%2C%20without%20real%20faith%20in%20anything%20except%20the%20power%20of%20a%20Diet%20Coke%20first%20thing%20in%20the%20morning%2C%20I%20certainly%20see%20a%20lot%20of%20signs.%0D%0A%0D%0ASigns%20of%20what%2C%20I%20don%27t%20know.%20Maybe%20by%20definition%2C%20that%20" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Another%20Ghost%20Story%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fanother-ghost-story%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2009/07/another-ghost-story/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Scarier than Jumbo Flying Squid!</title>
		<link>http://girlinapartyhat.com/index.php/2009/07/scarier-than-jumbo-flying-squid/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/07/scarier-than-jumbo-flying-squid/#comments</comments>
		<pubDate>Sat, 18 Jul 2009 03:26:13 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Vacation]]></category>
		<category><![CDATA[cousins]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[jumbo squid]]></category>
		<category><![CDATA[siblings with down syndrome]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=1645</guid>
		<description><![CDATA[I had to stop reading the squid stories. It&#8217;s gone from bad to worse &#8212; by yesterday the New York Times was reporting that jumbo, flying, carnivorous squid are pulling masks and oxygen tanks off divers up and down the San Diego coast. We were safely back in Phoenix by then, and upon reflection, I must [...]]]></description>
			<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-1646" title="katie" src="http://girlinapartyhat.com/wp-content/uploads/2009/07/katie.jpg" alt="katie" /></p>
<p>I had to stop reading the squid stories. It&#8217;s gone from bad to worse &#8212; by yesterday the <em>New York Times</em> was reporting that jumbo, flying, carnivorous squid are pulling masks and oxygen tanks off divers up and down the San Diego coast.</p>
<p>We were safely back in Phoenix by then, and upon reflection, I must tell you that really, squid were not the scariest thing on the beach last week.</p>
<p>I&#8217;m far more frightened of a typical six-year-old.</p>
<p>It&#8217;s not like I don&#8217;t walk amongst them on a regular basis, but seldom do I find myself in very close quarters with one for an extended period of time. That happened last week, when we vacationed with my parents and my sister Jenny and her family &#8212; including Ben, 8, Sam, 2 and Kate &#8212; 6.</p>
<p>My niece Kate is just about 6 weeks older than Sophie. My first memory of her is burned into my psyche &#8212; Jenny walking into my hospital room, carrying Kate in her bucket seat. She caught the first plane to Denver after I called to tell her about Sophie, hauling her own newborn.</p>
<p>(Jenny&#8217;s a way better sister than I am &#8212; a way braver one, at least. No way would I have taken my newborn into a dirty, smelly hospital. To be fair, Jenny is a hospital social worker, so she&#8217;s not freaked out by all things medical the way I am. Still. She&#8217;s one hell of a sister and friend.)</p>
<p>Kate and Sophie grew, one faster than the other. I know there are differences between Sophie and her peers, but it&#8217;s one of those smoke and mirror things &#8212; until I&#8217;m confronted with some quality time with Kate, I can sort of make those differences go away. Diminish a little. But Kate is so strong, so smart, so <em>on</em>.</p>
<p>And so close to her cousin Annabelle.</p>
<p>Only once or twice during the week together did I feel compelled to pull Annabelle and Kate aside and ask them to include Sophie. It wasn&#8217;t like that, not really. It was like they were in a different orbit. Sophie didn&#8217;t seem to care at all when the other girls took a walk up the beach (don&#8217;t worry, within eyeshot!) by themselves, or ran up to the room together to pee. Or did a complicated craft, or told silly stories, or &#8212; you get the idea.</p>
<p>Sophie was perfectly happy in the company of adults, or Baby Sam, as we all call him, who soon won&#8217;t be much of a baby anymore. (She, of course, had to be watched like a hawk. She&#8217;ll still run off if she can, and needed a lot of coaxing up and down stairs.) I didn&#8217;t really even think much of it til we were back home, and my girls were back to their ways.</p>
<p>We walked in the house, and the two of them went straight to Annabelle&#8217;s room, where they played together for a good 20 minutes. (A miracle!) Last night, Annabelle painted Sophie&#8217;s nails. This morning, she gently chastized her for chewing the polish off. They bicker, but they cuddle. They are friends. Sometimes.</p>
<p>At one point during the beach week, I did say to Annabelle, &#8220;I&#8217;m glad you&#8217;re having so much fun with Kate! Hard to believe she&#8217;s the same age as Sophie, isn&#8217;t it?&#8221;</p>
<p>Annabelle looked up at me. &#8220;Kate has her Kate Things, just like Sophie has her Sophie Things,&#8221; she said, more wisely than I could ever dream of putting it.</p>
<p>Still, it makes me melancholy for what isn&#8217;t. That said, Jenny and I barely spoke a civil word to one another til we were both pregnant for the first time. So there&#8217;s some perspective for you &#8212; and for me.</p>
<p>And maybe by next year&#8217;s beach trip, Sophie will have caught up to the other girls, at least a bit.</p>
<p>If not, that&#8217;s okay, too. It&#8217;ll have to be.</p>
<p><img class="alignnone size-full wp-image-1647" title="sophie beach" src="http://girlinapartyhat.com/wp-content/uploads/2009/07/sophie-beach.jpg" alt="sophie beach" /></p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fscarier-than-jumbo-flying-squid%2F&amp;title=Scarier%20than%20Jumbo%20Flying%20Squid%21&amp;notes=%0D%0A%0D%0AI%20had%20to%20stop%20reading%20the%20squid%20stories.%20It%27s%20gone%20from%20bad%20to%20worse%20--%20by%20yesterday%20the%20New%20York%20Times%20was%20reporting%20that%20jumbo%2C%20flying%2C%20carnivorous%20squid%C2%A0are%20pulling%20masks%20and%20oxygen%20tanks%20off%20divers%20up%20and%20down%20the%20San%20Diego%20coast.%0D%0A%0D%0AWe%20were" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fscarier-than-jumbo-flying-squid%2F&amp;t=Scarier%20than%20Jumbo%20Flying%20Squid%21" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fscarier-than-jumbo-flying-squid%2F&amp;title=Scarier%20than%20Jumbo%20Flying%20Squid%21&amp;annotation=%0D%0A%0D%0AI%20had%20to%20stop%20reading%20the%20squid%20stories.%20It%27s%20gone%20from%20bad%20to%20worse%20--%20by%20yesterday%20the%20New%20York%20Times%20was%20reporting%20that%20jumbo%2C%20flying%2C%20carnivorous%20squid%C2%A0are%20pulling%20masks%20and%20oxygen%20tanks%20off%20divers%20up%20and%20down%20the%20San%20Diego%20coast.%0D%0A%0D%0AWe%20were" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=Scarier%20than%20Jumbo%20Flying%20Squid%21%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fscarier-than-jumbo-flying-squid%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2009/07/scarier-than-jumbo-flying-squid/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>The Drive-In</title>
		<link>http://girlinapartyhat.com/index.php/2009/07/the-drive-in/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/07/the-drive-in/#comments</comments>
		<pubDate>Wed, 08 Jul 2009 13:26:47 +0000</pubDate>
		<dc:creator>Amysilverman</dc:creator>
				<category><![CDATA[Entertainment]]></category>
		<category><![CDATA[ADHD diagnosis for kids with Down syndrome]]></category>
		<category><![CDATA[autism and Down syndrome]]></category>
		<category><![CDATA[Big Surf]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[drive-in movies with kids]]></category>
		<category><![CDATA[Ice Age III]]></category>
		<category><![CDATA[Mamma Mia]]></category>
		<category><![CDATA[Scottsdale Drive-In]]></category>
		<category><![CDATA[Slate]]></category>

		<guid isPermaLink="false">http://www.girlinapartyhat.com/?p=1625</guid>
		<description><![CDATA[From the moment we pulled up at the drive-in, all I wanted to do was belt out, Stranded at the drive-in./Stranded a fool./What will they say &#8212; Monday at school? And so I did (with apologies to John Travolta). The good thing is, the monsoon winds were blowing so loudly, no one could hear. I [...]]]></description>
			<content:encoded><![CDATA[<p>From the moment we pulled up at the drive-in, all I wanted to do was belt out,</p>
<p><em>Stranded at the drive-in./Stranded a fool./What will they say &#8212; Monday at school?</em></p>
<p>And so I did (with apologies to John Travolta). The good thing is, the monsoon winds were blowing so loudly, no one could hear.</p>
<p>I had my doubts about the drive-in, even though my friend Kathy (she of cupcake baking fame) has been raving about it for years. It&#8217;s on the edge of town, technically on the Salt River/Pima Indian reservation (yes, we have bona fide Indian reservations, and that&#8217;s what they call them, here in metro Phoenix) and Kathy swears it&#8217;s a few degrees cooler.</p>
<p>Damn, she&#8217;s right. Maybe it&#8217;s the breeze blowing in from the waterpark across the street (that&#8217;s a joke, as is the waterpark itself, &#8220;Big Surf,&#8221; because yes, 40 years ago someone decided we needed to surf in the desert) or the fact it&#8217;s a bit removed from the concrete jungle. For whatever reason, though the temperature reached 110 yesterday, by nightfall at the Scottsdale Drive In, it was practically bearable.</p>
<p>Kathy whipped up a whole wheat pasta salad, set out lawn chairs, a small table and blankets, and made a bed for the girls in the back of her SUV. We had a whole posse, which included another large car, several more chairs, two moms and four more kids, a huge cooler and oatmeal cookies with dark chocolate M&amp;Ms. It was a great time.</p>
<p><em>Ice Age III</em> (what I saw of it, anyway) was not bad. The sound from the car radios was surprisingly good; the only drawback was that several batteries died by night&#8217;s end.</p>
<p>The best part: Sophie. This is the movie-going experience for my child! Like the princess with the pea, she tried every lawn chair, the back of each car, the blankets and every lap, before finally demanding she be strapped into her car seat, where she relaxed in luxury. The best part: She didn&#8217;t disturb a soul. (Not much, anyway.) I can&#8217;t remember the last time I took Sophie to the movies and she didn&#8217;t spend the entire time begging to go to the bathroom, then admitting she didn&#8217;t have to go once there. The most memorable experience was when we saw <em>Mamma Mia</em> last summer and Sophie ran down to the front of the theater and danced practically on top of the screen. (The staff were not amused.)</p>
<p>She&#8217;s got Down syndrome, that&#8217;s for sure, but as I filled out the multi-sheet questionaire from the latest psychologist yesterday, I wondered what the paper diagnosis would be, given my answers: Sophie&#8217;s got no attention span, she won&#8217;t sit still, she doesn&#8217;t always interact appropriately with others. Sounds like ADHD to me. Or even autism, and since this shrink is famous for giving that diagnosis to anyone who comes through the door, I better brace myself.</p>
<p>Not that I think Sophie&#8217;s autistic. Trust me, she&#8217;s not. But if you saw her at the movies &#8212; hands over ears, running down aisles, refusing to listen to reason&#8230;.</p>
<p>As usual, I digress. The drive-in experience was wonderful, and left me sad that it&#8217;s a dying breed. Funny, because outdoor movie-going is all the rage, as long as it&#8217;s in a hotel pool or at a fancy park. <em>Slate</em> just did a <a href="http://www.slate.com/id/2222147/">piece</a> on it this week. (To which I&#8217;ll say only, lady, you&#8217;re lucky if anyone ever invites you anywhere again, let alone a movie, after writing that.) I prefer the old school experience, for sure &#8212; a place still untouched by development (bless the Native Americans for moving slowly on such things), rickety and low budget ($6.50 for three of us for a double feature!) and, as Kathy puts it, &#8220;a dustbowl by day.&#8221;</p>
<p>&#8220;But see how it&#8217;s transformed into a wonderland at night?!&#8221; she asked, relaxing against her poofy comforter, diet cherry limeaid in hand, thrilled she&#8217;d finally dragged us all along.</p>
<p>She better watch out. We&#8217;ll be back, and we&#8217;re taking her with us.</p>

<div class="sociable">
<div class="sociable_tagline">
<strong>Share:</strong>
</div>
<ul>
	<li class="sociablefirst"><a rel="nofollow"  target="_blank" href="http://delicious.com/post?url=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fthe-drive-in%2F&amp;title=The%20Drive-In&amp;notes=From%20the%20moment%20we%20pulled%20up%20at%20the%20drive-in%2C%20all%20I%20wanted%20to%20do%20was%20belt%20out%2C%0D%0A%0D%0AStranded%20at%20the%20drive-in.%2FStranded%20a%20fool.%2FWhat%20will%20they%20say%20--%20Monday%20at%20school%3F%0D%0A%0D%0AAnd%20so%20I%20did%20%28with%20apologies%20to%20John%20Travolta%29.%20The%20good%20thing%20is%2C%20the%20monsoon%20win" title="del.icio.us"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/delicious.png" title="del.icio.us" alt="del.icio.us" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.facebook.com/share.php?u=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fthe-drive-in%2F&amp;t=The%20Drive-In" title="Facebook"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/facebook.png" title="Facebook" alt="Facebook" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://www.google.com/bookmarks/mark?op=edit&amp;bkmk=http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fthe-drive-in%2F&amp;title=The%20Drive-In&amp;annotation=From%20the%20moment%20we%20pulled%20up%20at%20the%20drive-in%2C%20all%20I%20wanted%20to%20do%20was%20belt%20out%2C%0D%0A%0D%0AStranded%20at%20the%20drive-in.%2FStranded%20a%20fool.%2FWhat%20will%20they%20say%20--%20Monday%20at%20school%3F%0D%0A%0D%0AAnd%20so%20I%20did%20%28with%20apologies%20to%20John%20Travolta%29.%20The%20good%20thing%20is%2C%20the%20monsoon%20win" title="Google Bookmarks"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/googlebookmark.png" title="Google Bookmarks" alt="Google Bookmarks" class="sociable-hovers" /></a></li>
	<li><a rel="nofollow"  target="_blank" href="http://girlinapartyhat.com/index.php/feed/" title="RSS"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/rss.png" title="RSS" alt="RSS" class="sociable-hovers" /></a></li>
	<li class="sociablelast"><a rel="nofollow"  target="_blank" href="http://twitter.com/home?status=The%20Drive-In%20-%20http%3A%2F%2Fgirlinapartyhat.com%2Findex.php%2F2009%2F07%2Fthe-drive-in%2F" title="Twitter"><img src="http://girlinapartyhat.com/wp-content/plugins/sociable/images/twitter.png" title="Twitter" alt="Twitter" class="sociable-hovers" /></a></li>
</ul>
</div>
]]></content:encoded>
			<wfw:commentRss>http://girlinapartyhat.com/index.php/2009/07/the-drive-in/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
	</channel>
</rss>
