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	<title>Girl in a Party Hat &#187; down syndrome support groups</title>
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		<title>Leo and Sophie</title>
		<link>http://girlinapartyhat.com/index.php/2010/03/leo-and-sophie/</link>
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		<pubDate>Sat, 20 Mar 2010 15:08:20 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[playdate]]></category>
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		<category><![CDATA[blogs about down syndrome]]></category>
		<category><![CDATA[down syndrome support groups]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2372</guid>
		<description><![CDATA[Our trip to New York City was full of high points, but I have to say that the best moment came when Sophie met Leo. I walked into a busy restaurant, looked around, and suddenly, this little boy I&#8217;ve been reading about almost every day for months leapt off the computer screen and into real [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-2374" title="nycleo" src="http://girlinapartyhat.com/wp-content/uploads/2010/03/nycleo.jpg" alt="nycleo" /></p>
<p>Our trip to New York City was full of high points, but I have to say that the best moment came when Sophie met Leo.</p>
<p>I walked into a busy restaurant, looked around, and suddenly, this little boy I&#8217;ve been reading about almost every day for months leapt off the computer screen and into real life, before my eyes.</p>
<p>Sophie ran right up to him for a hug. (Contrary to popular misconceptions about people with Down syndrome, she doesn&#8217;t do that with everyone.)</p>
<p>I felt the tears well up even before I could take my coat off.</p>
<p>I need to back up. This will sound horrible, but there&#8217;s no way of saying it without just saying it (and somehow, reader, I bet you&#8217;ll relate).</p>
<p>I&#8217;m not a Support Group Kinda Girl. Not that there&#8217;s anything wrong with support groups. In fact, there&#8217;s a lot of good &#8212; and I know I&#8217;m missing out by avoiding the two (I might add warring &#8212; I do love that part &#8212; at least they were warring at one point not long ago) Down syndrome support groups in Phoenix.</p>
<p>I know. I know I know I know <em>I know</em>. But that whole thing&#8217;s just not for me. Maybe it&#8217;s because I live where I was born. I am incredibly blessed with family and friends and all sorts of resources (like a kindergarten teacher who continues to look out for Sophie even now that she&#8217;s in first grade, <em>and</em> plays a mean game of poker in her off time) to help us navigate all sorts of situations.</p>
<p>Even so, I didn&#8217;t realize something was missing &#8212; til I found it. The thing is, just because you have something in common with someone (say you&#8217;re both journalists, or both Jewish, or both obsessed with rick rack and vintage toys and certain kid books/movies/music, or both think way too much about things like where you live, or both have kids with Down syndrome), that doesn&#8217;t mean you&#8217;ll wind up friends.</p>
<p>Now, if you have all of those things in common and more, yeah, then it might happen.</p>
<p>That&#8217;s <a href="http://everythingforareason-moon.blogspot.com/">Maya</a>.</p>
<p>I&#8217;ve written about Maya before, including on the occasion of a trip I took to New York last summer, when I got to meet her. (In person, that is &#8212; rather than on her blog. We had lunch by her office on a work day, hence no Leo.)</p>
<p>And I&#8217;ve said this before, but in honor of meeting Leo (and the fact that his parents schlepped him and his 2 and a half year old sister from New Jersey on a truly horrible day to meet us) I need to say again that starting a blog was a Really Important Thing for me not only because it gave me the ability to go on (and on and on &#8212; and on) about Sophie, but because it led me to some pretty terrific people. My (frankly) arm&#8217;s length suport group, including Robert Polk (who lives in Texas and has an adult son, Ryan, with DS, and goes by Bobby but will forever be RobertPolk to me) and <a href="http://sarahely8989.blogspot.com/">Joyce and Sarah</a>, and <a href="http://i-dont-know-what-to-say.blogspot.com/">Cate</a> and <a href="http://starrlife.wordpress.com/">Starrlife</a>.</p>
<p>And Maya.</p>
<p>Technically, Sophie&#8217;s an older woman (she&#8217;s got almost a year on Leo) but he towers over her, and we all thought they made a lovely couple. They ate scrambled eggs, french fries and ice cream, colored, and played with Leo&#8217;s sister Ellie. Sophie showed off her new life-like &#8220;Fur Real&#8221; guinea pig, which I think is really gross but Leo and Ellie appreciated. (Ray and Annabelle were at The Met with his aunt; I was concerned about another foot-through-the $180 million-Picasso incident with Sophie, so it was a good time to split up.)</p>
<p>We had a wonderful brunch and hung out at a bookstore and when Sophie and I said goodbye and settled into a cab, the song &#8220;Goodbye Girl&#8221; was playing and I had another cry &#8212; an I Heart New York But I Don&#8217;t Live Here cry, thinking about that movie, which is one of the movies that made me fall in love with New York when I was a kid &#8212; and I thought, I bet this song makes Maya cry, too.</p>
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