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	<title>Girl in a Party Hat &#187; down syndrome and siblings</title>
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		<title>Ahh&#8230;the life of&#8230;Down Syndrum Sister</title>
		<link>http://girlinapartyhat.com/index.php/2009/02/ahhthe-life-ofdown-syndrum-sister/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/02/ahhthe-life-ofdown-syndrum-sister/#comments</comments>
		<pubDate>Mon, 23 Feb 2009 00:39:48 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[down syndrome and siblings]]></category>
		<category><![CDATA[science fair projects]]></category>

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		<description><![CDATA[In the past week, Annabelle has talked about (and, I&#8217;m guessing, thought about) Down syndrome more than she has in her entire 7 and a half years. The science fair project is due tomorrow (don&#8217;t ask if we&#8217;re done &#8212; though we are finished with Sophie&#8217;s rock collection, entitled &#8220;Sophie Rocks&#8221;) so I&#8217;m guessing the [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>In the past week, Annabelle has talked about (and, I&#8217;m guessing, thought about) Down syndrome more than she has in her entire 7 and a half years.</p>
<p>The science fair project is due tomorrow (don&#8217;t ask if we&#8217;re done &#8212; though we are finished with Sophie&#8217;s rock collection, entitled &#8220;Sophie Rocks&#8221;) so I&#8217;m guessing the conversation will slow after that.</p>
<p>It doesn&#8217;t bother me, but it is a little exhausting.</p>
<p>It&#8217;s fascinating, watching her process it. I don&#8217;t know how the &#8220;final report&#8221; will turn out for the science fair, but last night Annabelle worked on a drawing &#8212; a family portrait &#8212; entitled, &#8220;Ahh&#8230;the life of&#8230;Down Syndrum Sister.&#8221;</p>
<p>It depicts the four of us, lined up on a ski slope (Annabelle and Ray went for her first time recently). Annabelle&#8217;s saying (I&#8217;ve corrected spelling here), &#8220;Wow! Steep!&#8221;, I&#8217;m giving her advice (as I don&#8217;t ski): &#8220;Keep it steady,&#8221; and Ray&#8217;s warning, &#8220;Be careful.&#8221; Sophie&#8217;s at the end, clearly about to fall, yelling, &#8220;Mom! Dad! Help! Help!&#8221;</p>
<p>Here&#8217;s the drawing:</p>
<p><img class="alignnone size-full wp-image-982" title="sister" src="http://girlinapartyhat.files.wordpress.com/2009/02/sister.jpg" alt="sister" /></p>
<p>I gently suggested it might not be appropriate for the science fair. (What IS appropriate? Annabelle wants to include a picture of Sophie. I think it&#8217;s ok if it&#8217;s not front and center, but tucked away a bit. We&#8217;ll see how things fall out tonight.) So she addressed it to Sophie and left it in her room for her.</p>
<p>This morning at breakfast, Annabelle casually mentioned that a lot of &#8220;people&#8221; (translation: kids at school) think Sophie is a midget. We talked for a while &#8212; she said that didn&#8217;t bother her at all &#8212; and Annabelle read a new kid book on DS (this was the worst so far &#8212; the author purports that Down syndrome occurs when you have &#8220;an extra gene&#8221;) and then Annabelle looked a little exhausted herself. It was clearly time for a break, and she gave herself one.</p>
<p>She and Sophie started tickling each other, cracking themselves up, and Annabelle had one more comment to make on the heavy subject: &#8220;She sure is different but she still is ticklish.&#8221;</p>
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