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	<title>Girl in a Party Hat &#187; cranial technology</title>
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		<title>Ghost Story</title>
		<link>http://girlinapartyhat.com/index.php/2010/02/ghost-story/</link>
		<comments>http://girlinapartyhat.com/index.php/2010/02/ghost-story/#comments</comments>
		<pubDate>Mon, 01 Feb 2010 23:42:04 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[health]]></category>
		<category><![CDATA[cranial technology]]></category>
		<category><![CDATA[doc band]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Laurie Notaro]]></category>
		<category><![CDATA[spooky little girl]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=2221</guid>
		<description><![CDATA[Maybe it was because I was reading a ghost story at the time (specifically, &#8220;Spooky Little Girl&#8221; &#8211; the latest book by my dear friend, the prolific and hilarious Laurie Notaro &#8212; it&#8217;ll be out in April) or maybe it&#8217;s just because I scare easily. But I literally jumped and squealed when I looked inside a blue plastic bag shoved [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-2222" title="helmet1" src="http://girlinapartyhat.com/wp-content/uploads/2010/02/helmet1.jpg" alt="helmet1" /></p>
<p>Maybe it was because I was reading a ghost story at the time (specifically, &#8220;Spooky Little Girl&#8221; &#8211; the latest book by my dear friend, the prolific and hilarious Laurie Notaro &#8212; it&#8217;ll be out in April) or maybe it&#8217;s just because I scare easily.</p>
<p>But I literally jumped and squealed when I looked inside a blue plastic bag shoved in the back of a cabinet and found Sophie&#8217;s head.</p>
<p>When Sophie was three months old, we finally had our appointment with the geneticist, the guy who was supposed to impart all kinds of knowledge but really didn&#8217;t tell us anything Ray hadn&#8217;t already researched himself about Down syndrome.</p>
<p>As we were leaving his office, the geneticist pointed to the rather-flat back of Sophie&#8217;s head and warned, &#8220;You better do something about that head soon!&#8221;</p>
<p>Looking back, I can&#8217;t believe I listened to him. But I did. We got her one of those $5,000-not-covered-by-insurance helmets to round out her flat head. And turns out, I&#8217;ve still got the helmet &#8212; and the mold they made of Sophie&#8217;s head &#8212; to prove it.</p>
<p>I&#8217;m not knocking those helmets. One of my writers did a <a href="http://www.phoenixnewtimes.com/2005-05-05/news/head-games&amp;page=34">terrific story </a>about DOC bands  &#8211; they were invented here in Arizona, and have saved many children with serious cranial deformities from expensive and dangerous surgery.</p>
<p>But I&#8217;m not sure Sophie really needed the helmet at all. Which is a good thing, since it didn&#8217;t do much for her. To be fair to the folks who sold it to us, she didn&#8217;t wear it constantly, as required. Poor baby Sophie quickly rubbed herself a huge &#8220;hot spot&#8221; (yes, like the kind dogs get &#8212; looked just like that) on her head, and couldn&#8217;t wear the helmet much at all.</p>
<p>In a way, I was flattered when the geneticist told us to fix her head &#8212; even though at the time we were days away from open-heart surgery, and clearly had bigger fish to fry. To me, it meant Sophie was worth something, that it wasn&#8217;t okay to let her walk around with a flat head.</p>
<p>Today, when we&#8217;re cuddling, and I feel that flat spot on the back of her skull &#8212; I don&#8217;t think you can see it at all with her hair over it, at least I don&#8217;t notice it &#8212; I wince, hating that I gave her even a moment&#8217;s discomfort with that dumb helmet.</p>
<p>And yet, I couldn&#8217;t just throw the thing away. Sophie was fascinating with my find &#8212; and played with the DOC band for a while. Then I shoved the mold and the helmet back in the blue bag and hid it away high in her closet. Not a bad ghost to have to confront once in a while, I figure.   </p>
<p><img class="alignnone size-full wp-image-2223" title="helmet2" src="http://girlinapartyhat.com/wp-content/uploads/2010/02/helmet2.jpg" alt="helmet2" /></p>
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