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	<title>Girl in a Party Hat &#187; cousins</title>
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		<title>Scarier than Jumbo Flying Squid!</title>
		<link>http://girlinapartyhat.com/index.php/2009/07/scarier-than-jumbo-flying-squid/</link>
		<comments>http://girlinapartyhat.com/index.php/2009/07/scarier-than-jumbo-flying-squid/#comments</comments>
		<pubDate>Sat, 18 Jul 2009 03:26:13 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Vacation]]></category>
		<category><![CDATA[cousins]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[jumbo squid]]></category>
		<category><![CDATA[siblings with down syndrome]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=1645</guid>
		<description><![CDATA[I had to stop reading the squid stories. It&#8217;s gone from bad to worse &#8212; by yesterday the New York Times was reporting that jumbo, flying, carnivorous squid are pulling masks and oxygen tanks off divers up and down the San Diego coast. We were safely back in Phoenix by then, and upon reflection, I must [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><img class="alignnone size-full wp-image-1646" title="katie" src="http://girlinapartyhat.com/wp-content/uploads/2009/07/katie.jpg" alt="katie" /></p>
<p>I had to stop reading the squid stories. It&#8217;s gone from bad to worse &#8212; by yesterday the <em>New York Times</em> was reporting that jumbo, flying, carnivorous squid are pulling masks and oxygen tanks off divers up and down the San Diego coast.</p>
<p>We were safely back in Phoenix by then, and upon reflection, I must tell you that really, squid were not the scariest thing on the beach last week.</p>
<p>I&#8217;m far more frightened of a typical six-year-old.</p>
<p>It&#8217;s not like I don&#8217;t walk amongst them on a regular basis, but seldom do I find myself in very close quarters with one for an extended period of time. That happened last week, when we vacationed with my parents and my sister Jenny and her family &#8212; including Ben, 8, Sam, 2 and Kate &#8212; 6.</p>
<p>My niece Kate is just about 6 weeks older than Sophie. My first memory of her is burned into my psyche &#8212; Jenny walking into my hospital room, carrying Kate in her bucket seat. She caught the first plane to Denver after I called to tell her about Sophie, hauling her own newborn.</p>
<p>(Jenny&#8217;s a way better sister than I am &#8212; a way braver one, at least. No way would I have taken my newborn into a dirty, smelly hospital. To be fair, Jenny is a hospital social worker, so she&#8217;s not freaked out by all things medical the way I am. Still. She&#8217;s one hell of a sister and friend.)</p>
<p>Kate and Sophie grew, one faster than the other. I know there are differences between Sophie and her peers, but it&#8217;s one of those smoke and mirror things &#8212; until I&#8217;m confronted with some quality time with Kate, I can sort of make those differences go away. Diminish a little. But Kate is so strong, so smart, so <em>on</em>.</p>
<p>And so close to her cousin Annabelle.</p>
<p>Only once or twice during the week together did I feel compelled to pull Annabelle and Kate aside and ask them to include Sophie. It wasn&#8217;t like that, not really. It was like they were in a different orbit. Sophie didn&#8217;t seem to care at all when the other girls took a walk up the beach (don&#8217;t worry, within eyeshot!) by themselves, or ran up to the room together to pee. Or did a complicated craft, or told silly stories, or &#8212; you get the idea.</p>
<p>Sophie was perfectly happy in the company of adults, or Baby Sam, as we all call him, who soon won&#8217;t be much of a baby anymore. (She, of course, had to be watched like a hawk. She&#8217;ll still run off if she can, and needed a lot of coaxing up and down stairs.) I didn&#8217;t really even think much of it til we were back home, and my girls were back to their ways.</p>
<p>We walked in the house, and the two of them went straight to Annabelle&#8217;s room, where they played together for a good 20 minutes. (A miracle!) Last night, Annabelle painted Sophie&#8217;s nails. This morning, she gently chastized her for chewing the polish off. They bicker, but they cuddle. They are friends. Sometimes.</p>
<p>At one point during the beach week, I did say to Annabelle, &#8220;I&#8217;m glad you&#8217;re having so much fun with Kate! Hard to believe she&#8217;s the same age as Sophie, isn&#8217;t it?&#8221;</p>
<p>Annabelle looked up at me. &#8220;Kate has her Kate Things, just like Sophie has her Sophie Things,&#8221; she said, more wisely than I could ever dream of putting it.</p>
<p>Still, it makes me melancholy for what isn&#8217;t. That said, Jenny and I barely spoke a civil word to one another til we were both pregnant for the first time. So there&#8217;s some perspective for you &#8212; and for me.</p>
<p>And maybe by next year&#8217;s beach trip, Sophie will have caught up to the other girls, at least a bit.</p>
<p>If not, that&#8217;s okay, too. It&#8217;ll have to be.</p>
<p><img class="alignnone size-full wp-image-1647" title="sophie beach" src="http://girlinapartyhat.com/wp-content/uploads/2009/07/sophie-beach.jpg" alt="sophie beach" /></p>
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		<title>Never were there such adoring cousins</title>
		<link>http://girlinapartyhat.com/index.php/2008/05/never-were-there-such-adoring-cousins/</link>
		<comments>http://girlinapartyhat.com/index.php/2008/05/never-were-there-such-adoring-cousins/#comments</comments>
		<pubDate>Mon, 26 May 2008 05:24:15 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[chocolate ice cream]]></category>
		<category><![CDATA[cousins]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[sisters]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.wordpress.com/?p=34</guid>
		<description><![CDATA[Growing up, I can remember my mom singing this really annoying song that started, &#8220;Sisters, sisters. Never were there such adoring sisters.&#8221; I don&#8217;t recall the rest of the words, but I do remember that she&#8217;d sing it when my younger sister Jenny and I were fighting &#8212; which was often. Actually, it probably would have [&#8230;]]]></description>
				<content:encoded><![CDATA[<p>Growing up, I can remember my mom singing this really annoying song that started, &#8220;Sisters, sisters. Never were there such adoring sisters.&#8221; I don&#8217;t recall the rest of the words, but I do remember that she&#8217;d sing it when my younger sister Jenny and I were fighting &#8212; which was often.</p>
<p>Actually, it probably would have been better if we&#8217;d fought more. At least that would have signaled some sort of relationship. With four and a half years between us, and no common interests, we might as well have been living on opposite ends of the planet, instead of in adjacent bedrooms. Through grade school, high school, college, first jobs, grad school and weddings, we had nothing to talk about.</p>
<p>Then we both got pregnant within weeks of each other. Overnight, there weren&#8217;t enough hours in the day. Emails ping ponged back and forth on everything from creaky crotches (we both had them) to shower games (neither wanted them). Ben was born in May, Annabelle in July. A year later, Jenny told me she was pregnant again; within a week, so was I.</p>
<p>Kate arrived in April. In May, I called Jenny from my hospital bed and choked out, &#8220;They think Sophie might have Down syndrome.&#8221; &#8220;I&#8217;m coming,&#8221; she said. Before I could insist that she and her healthy newborn stay away, she walked into my hospital room with Kate in a baby seat, carrying a sweet Gund bear blanket for Sophie and a fake boombox for Annabelle that plays three grating songs. We still have it. Both girls love it. (I don&#8217;t think the batteries have ever died. It&#8217;s like a Hanukkah miracle.)</p>
<p>I freaked a little when Jenny called to say she was pregnant with her third. Ray wanted another &#8212; still does &#8212; but I know what the statistics say, and I know that another baby with Down syndrome might not be as lucky healthwise as Sophie has been so far. (Not that Sophie was all THAT healthy, two open heart surgeries down.) For a while, we were back on unfamiliar turf, Jenny and I. That passed.</p>
<p>Sam turned 1 earlier this month, and this weekend the girls and I are here in Denver for a visit. The cousins adore each other. Jenny and I, who never had a relationship with our own cousins (gee, our childhoods are sounding rather emotionally barren, huh?) love seeing our kids together. Both of my girls love Baby Sam so much it gives me pause &#8212; but so does the juggling act Jenny and her husband Jonathan have got going with their threesome. (Of course she&#8217;s not so busy that Aunt Jenny didn&#8217;t have to find the elusive single-serving chocolate ice cream I never did find, although with a tiny Elmo cake. We sang one final Happy Birthday to Sophie.)</p>
<p><img class="alignleft size-medium wp-image-35" src="http://girlinapartyhat.files.wordpress.com/2008/05/sophie-cake.jpg" alt="" /></p>
<p>What really stops me in my tracks is the relationship between Annabelle and her cousin Kate. Annabelle and Sophie have a terrific rapport. They really do. Sophie teases and pulls hair, but more and more, the two of them will disappear into Annabelle&#8217;s room to play together. I&#8217;ve never seen a soul as patient and loving as Annabelle, and Sophie adores her older sister. I can even fool myself into thinking our household is normal &#8212; til I see Annabelle and Kate together.</p>
<p>These two are truly BFFs, cracking up and playing intricate pretend games; she&#8217;s two years younger, but Kate keeps up with Annabelle almost effortlessly. They&#8217;re almost the same size; in fact, Annabelle sometimes wears Kate&#8217;s hand me downs. I look at them and see soul sisters in a way I fear I&#8217;ll never see it with Annabelle and Sophie, no matter how much they love each other.</p>
<p>I don&#8217;t know how Sophie will ever keep up. I put Kate and Sophie side by side on bright yellow swings at the park today. Kate&#8217;s only six weeks older; you&#8217;d never know it, and not just from their physical size.</p>
<p><img class="alignright size-medium wp-image-36" src="http://girlinapartyhat.files.wordpress.com/2008/05/sophie-kate.jpg" alt="" /></p>
<p>This afternoon, Jenny and I left Jonathan with all five kids and ran around the corner to get pedicures. The woman sitting next to me in the pedicure chair &#8212; pretty, with perfect eye makeup and long red nails &#8212; was telling someone else there that she&#8217;s been blind for many years. Her service dog was the only thing that gave her away, that and her peculiarly beautiful pale green eyes, with turned out to be prosthetics.</p>
<p>The man talking to her apologized for so many questions, and the woman said no problem, she&#8217;s often asked to speak in schools. I was glad, listening to her; she was upbeat in a completely real way, matter of fact about her life. No self pity for her, at least none today.</p>
<p>About halfway through our pedicures, Jenny realized her cell phone had fallen into the water and was soaking along with her feet. On another day, I might have cried over that. I can say the same for her. Instead, we looked at each other and shrugged. Then laughed. (Although everyone in the salon seemed to have a piece of advice for her about how to save the phone, by the end of the evening she&#8217;d given up hope. I&#8217;m sure we&#8217;re headed for the Verizon store tomorrow.)</p>
<p>Watching Annabelle and Kate play on the train together tonight, as we rode Denver&#8217;s light rail downtown for sushi, I tried to think of the woman with the green eyes that don&#8217;t see, and shake myself out of my funk. Be happy that Annabelle has Kate, I told myself.</p>
<p>I&#8217;d like to tell you that it worked.</p>
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