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	<title>Girl in a Party Hat &#187; Junior High</title>
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		<title>Always Look a Gift A+ in the Mouth</title>
		<link>http://girlinapartyhat.com/index.php/2014/10/always-look-a-gift-a-in-the-mouth/</link>
		<comments>http://girlinapartyhat.com/index.php/2014/10/always-look-a-gift-a-in-the-mouth/#comments</comments>
		<pubDate>Wed, 22 Oct 2014 21:06:02 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Junior High]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5297</guid>
		<description><![CDATA[I dragged myself into the house the other night after work, exhausted, preoccupied with how quickly I could make dinner and hit the couch, when Sophie stopped me in my tracks &#8212; literally. &#8220;Look!&#8221; she said, pulling me over to the refrigerator, where she and the nanny had posted Sophie&#8217;s first junior high school report card. [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><a href="http://girlinapartyhat.com/wp-content/uploads/2014/10/reportcard.jpg"><img class="aligncenter wp-image-5299" src="http://girlinapartyhat.com/wp-content/uploads/2014/10/reportcard-300x300.jpg" alt="reportcard" /></a></p>
<p>I dragged myself into the house the other night after work, exhausted, preoccupied with how quickly I could make dinner and hit the couch, when Sophie stopped me in my tracks &#8212; literally.</p>
<p>&#8220;Look!&#8221; she said, pulling me over to the refrigerator, where she and the nanny had posted Sophie&#8217;s first junior high school report card.</p>
<p>&#8220;Can I sleep in your bed?&#8221; she asked. That&#8217;s Sophie&#8217;s question these days, pretty much anything might qualify her for her favorite reward, an all-night spot between her parents.</p>
<p>&#8220;Wait a second, let me see this,&#8221; I said, slowly digesting the grades. A B+ in Science, an A in Chorus, an A+ in Art. Okay.</p>
<p>But an A+ in Language Arts? I  knew Sophie had done very well on several vocabulary tests, learning words like anthropomorphic and sidle. Then I thought about the parent/teacher conference I attended a few weeks ago, and how the language arts teacher looked at me with sympathy and suggested that I buy Sophie a few books from the Madeline series so she gets the hang of actually finishing a book, rather than just collecting age-appropriate chapter books she&#8217;ll never read.  Now an A+?</p>
<p>And an A+ in math? Please. As far as I know, no one on either side of our family has ever gotten an A+ in math. And I&#8217;ve watched Sophie struggle with simple addition, let alone multiplying fractions, the current curriculum in her class.</p>
<p>An A+ is, I suppose, one way to keep an annoying parent from calling, right? In my case, not so much. For me, a grade like that is a red flag, a sure sign that my kid is your mascot, not your honors student. On the rare occasions I&#8217;ve taught over the years, I&#8217;ve avoided the A+ like the plague. Really, who&#8217;s deserving of that? And what incentive is there to go on, to improve?</p>
<p>And yet &#8212; that&#8217;s a pretty freaking awesome report card, right?</p>
<p>I stood in front of the fridge, resolving the call the teachers, but knowing I wouldn&#8217;t &#8212; not for a little while, anyway.  Sophie deserves to bask in the glow. I&#8217;ll take a little of it, too. I&#8217;ve never been the type to believe in an A for effort; in my world, you better put out the work befitting of the grade. But I&#8217;m often reminded that Sophie has rocked my world &#8212; in a good way.</p>
<p>I turned from the refrigerator and reached down for the littlest sixth grader ever, pulling her into a hug.</p>
<p>&#8220;YES!&#8221; I said. &#8220;You can sleep in my bed tonight. I couldn&#8217;t be prouder of you!&#8221;</p>
<p>And I meant it.</p>
<p>&nbsp;</p>
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		<item>
		<title>Small Kindnesses</title>
		<link>http://girlinapartyhat.com/index.php/2014/10/small-kindnesses/</link>
		<comments>http://girlinapartyhat.com/index.php/2014/10/small-kindnesses/#comments</comments>
		<pubDate>Wed, 01 Oct 2014 19:52:02 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Junior High]]></category>
		<category><![CDATA[down syndrome and public school]]></category>
		<category><![CDATA[junior high and down syndrome]]></category>
		<category><![CDATA[special needs]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5275</guid>
		<description><![CDATA[The other day I opened Sophie&#8217;s school backpack and noticed she had a new set of folders &#8212; shiny, carefully labeled with each of her classes and in her favorite themes, kittens and nail polish. Her aide did it. She didn&#8217;t ask, or make a big deal out of it. She just did it, knowing [&#8230;]]]></description>
				<content:encoded><![CDATA[<p><a href="http://girlinapartyhat.com/wp-content/uploads/2014/10/folders.jpg"><img class="aligncenter wp-image-5276" src="http://girlinapartyhat.com/wp-content/uploads/2014/10/folders-300x300.jpg" alt="folders" /></a></p>
<p>The other day I opened Sophie&#8217;s school backpack and noticed she had a new set of folders &#8212; shiny, carefully labeled with each of her classes and in her favorite themes, kittens and nail polish. Her aide did it. She didn&#8217;t ask, or make a big deal out of it. She just did it, knowing Sophie would love it. And she did. Me, too.</p>
<p>A small kindness. There have been many, so far, as Sophie&#8217;s stuck a toe into junior high, a time and place typically considered the worst kind of viper pit. Not for Sophie, not so far. I get that we&#8217;re only two months in; there&#8217;s plenty of time left for problems, and we&#8217;ve had a few bumps so far. But not what I expected, certainly not what I feared.</p>
<p>My biggest fear, after safety, was friendship. Would Sophie wander around alone (with her adult shadow) &#8212; head down in that typical Down syndrome stance, with (horror) her thumb in her mouth? Would anyone talk to her? Would she make a real friend? I got an inkling things would be okay even before the first day of school, when we walked into the office to drop some paperwork off with the nurse and a kid I&#8217;ve never seen called out, &#8220;Hi Sophie!&#8221;</p>
<p>Even at a new, strange place, people know Sophie. And on the few occasions I&#8217;ve been on campus, it&#8217;s been the same. Kids and adults know her, seek her out, if only to say hello.</p>
<p>And beyond hello? It&#8217;s going more slowly, understandably. Sophie does still eat lunch every day with an old friend from elementary school who also happens to have Down syndrome. But a note came home the other day from a new girlfriend looking for a playdate. And I hear there&#8217;s a boy in Sophie&#8217;s art class who carefully arranges all of her materials each day so they are ready when she arrives.</p>
<p>A small kindness, and one I hope I didn&#8217;t end after Sophie proposed marriage to this boy.</p>
<p>Sophie has attended her first school dance, performed in her first junior high choir concert and later this month she&#8217;ll try out for cheer. The school has started a Best Buddies program; in a couple weeks she&#8217;ll be matched with her buddy. Sophie&#8217;s teachers report that she pays attention in class (probably not all the time) and raises her hand to answer questions posed to the group. She got a C on a recent science test that she took with no modifications. She still struggles in math.</p>
<p>This school has embraced my little girl. I called with a concern the other day, and I received a call back before day&#8217;s end from not just one administrator, but a group: the principal, vice principal, school psychologist and sixth grade team leader. The matter was quickly resolved, and I thanked them (profusely) for being so responsive, and so welcoming to Sophie.</p>
<p>&#8220;She&#8217;s already taught us so much,&#8221; one of them said with a happy sigh.</p>
<p>For her part, Sophie is still not so sure about junior high. Every morning, it&#8217;s a struggle to get her into her uniform and into the car, and when we drive past the turn off for the other neighborhood junior high &#8212; the one her best friend and most of her former classmates attend &#8212; she tells me, &#8220;I want to go to Sarah&#8217;s school.&#8221;</p>
<p>When we pull up to Sophie&#8217;s school, her sweet aide comes right to the car to get her. But she doesn&#8217;t want to get out. Sticks her thumb in her mouth, puts her head down, mutters that she&#8217;s tired. Junior high is really hard. I imagine the energy it takes Sophie to wind up and get going, to keep her thumb out of her mouth, her head up. Some days, kitten folders just aren&#8217;t going to be enough of a motivator.</p>
<p>After I drop her off I drive to the gym, and I will admit that I, too, have trouble getting out of the car to start my own day.</p>
<p>I hope sixth grade gets easier for Sophie, but really, I have to admit that she&#8217;s got it pretty good, hit the middle school jackpot. How do I explain to her that I&#8217;ve never encountered a kid &#8212; special needs or not &#8212; having such a good junior high experience?</p>
<p>For now I&#8217;ll focus on the small kindnesses, and hope that someday Sophie can, too.</p>
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		<item>
		<title>Down syndrome and Junior High: Here We Go</title>
		<link>http://girlinapartyhat.com/index.php/2014/08/down-syndrome-and-junior-high-here-we-go/</link>
		<comments>http://girlinapartyhat.com/index.php/2014/08/down-syndrome-and-junior-high-here-we-go/#comments</comments>
		<pubDate>Sun, 10 Aug 2014 20:25:08 +0000</pubDate>
		<dc:creator><![CDATA[Amysilverman]]></dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[Junior High]]></category>

		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5209</guid>
		<description><![CDATA[All summer long, Sophie was obsessed with plays &#8212; buying them, reading them, casting them. Because our local bookstore doesn&#8217;t stock any kid-oriented scripts, Sophie&#8217;s collection is a little odd for a tween: Our Town, the collected works of Neil Simon, and The Miracle Worker. Odder still for a kid with Down syndrome. I&#8217;m not [&#8230;]]]></description>
				<content:encoded><![CDATA[<p style="text-align: center;"><a href="http://girlinapartyhat.com/wp-content/uploads/2014/08/photo-403.jpg"><img class="aligncenter  wp-image-5214" alt="photo-403" src="http://girlinapartyhat.com/wp-content/uploads/2014/08/photo-403-300x300.jpg" /></a></p>
<p>All summer long, Sophie was obsessed with plays &#8212; buying them, reading them, casting them.</p>
<p>Because our local bookstore doesn&#8217;t stock any kid-oriented scripts, Sophie&#8217;s collection is a little odd for a tween: <em>Our Town</em>, the collected works of Neil Simon, and <em>The Miracle Worker</em>. Odder still for a kid with Down syndrome. I&#8217;m not honestly sure how much of this stuff she can actually read and comprehend. Enough, I figure.</p>
<p>Enough to ask some good questions.</p>
<p>&#8220;Where are all of Helen&#8217;s lines?&#8221; she wanted to know one day last week.</p>
<p>When I explained that Helen Keller doesn&#8217;t have any lines, and reminded Sophie of the details of the play &#8212; which we saw this summer &#8212; she shook her head and informed me she&#8217;d be writing some herself because she intended to play Helen, and it wouldn&#8217;t do for Helen to not have any lines.</p>
<p>&#8220;And Mrs. W. will be Annie Sullivan,&#8221; she told me.</p>
<p>&#8220;Perfect,&#8221; I said, smiling to myself.</p>
<p>Mrs. W. (we typically call her by her entire name, but I won&#8217;t here) has been Sophie&#8217;s instructional aide at school for the last three years, grades 3-5, and last week she joined her for sixth grade. She is the reason Sophie is being mainstreamed at our neighborhood junior high, in regular classes with typical kids.</p>
<p>That is a pretty strong statement, but it&#8217;s true. There is no way I could have sent Sophie off to school this way &#8212; absolutely no freaking way &#8212; without this woman by her side.</p>
<p>And not by her side, because that&#8217;s the beauty of Mrs. W. A lot of people will tell you that a one-on-one aide is a bad idea, that federal law prescribes that a kid with a disability be placed in the &#8220;least restrictive setting&#8221; and that an aide automatically precludes that from happening. They are wrong. What they mean to say is that an aide is automatically expensive. Very expensive. Guilt-inducingly expensive, if you are me.</p>
<p>And, if you are Sophie with Mrs. W., worth every penny of the government&#8217;s money.</p>
<p>We held back on asking for an aide for Sophie until third grade, at which point I hired a lawyer, deciding we had to make this happen quickly and decisively. To my surprise, the plan worked. Boom. Sophie had an aide. And to be honest, I knew I was playing with fire. The whole thing could have been a disaster with the wrong person. But along came Mrs. W. &#8212; they should use her as a role model in training aides (which doesn&#8217;t really happen, from what I can tell). Mrs. W. is experienced in education, calm but firm and knows when to push in and more important, when to pull back.</p>
<p>She also knows Sophie. As elementary school drew to a close, I spent several panicked months trying to figure out where Sophie should go to junior high. The neighborhood school was emerging as the only real viable option, but I was terrified of what I&#8217;d heard: more than 1,000 kids and not much history mainstreaming the way we wanted to mainstream Sophie.</p>
<p>And then one day I ran into Mrs. W. in the hall at the elementary school.</p>
<p>&#8220;You know,&#8221; she said quietly, &#8220;I&#8217;d be willing to go to junior high with Sophie.&#8221;</p>
<p>I got in the car and called my mom.</p>
<p>&#8220;Do you think I can I stop looking for a school now?&#8221; I asked, feeling the weight of Sophie&#8217;s future &#8212; her immediate one, anyway &#8212; lift from my shoulders. For the first time in weeks, I could breath.</p>
<p>Mrs. W. has been at every planning meeting. She asked for a copy of Sophie&#8217;s schedule so she could contact each of her teachers before the year even started. We attended &#8220;meet the teacher&#8221; together and coordinated morning drop-off and afternoon pick-up.</p>
<p>This school is very good. Better than I expected. Sophie has choir and visual art every day (her sister was jealous of the latter, which she doesn&#8217;t get at her fancy charter school) and from the principal down, as we entered the school year the staff was kind and responsive. The gifted kids are segregated in their own private building, but all kids at the school are considered on the path to college and the stress of that challenge shows on the faces of the adults charged with making it happen. Sophie&#8217;s school ID says &#8220;2025 college graduate&#8221; on it.</p>
<p>By the end of the first week of school, I was feeling cocky. Things are going so well, I marveled Friday afternoon as I walked up to the office for the first team meeting of the year &#8212; a gathering of administrators, therapists and teachers. Walking in, I realized that the only person I really knew in the room was Mrs. W. I took a seat next to her and took paper from my calendar to take notes, trying not to let anyone see how nervous I was.</p>
<p>Introductions were made around the table, and the first to speak was a teacher wearing a purple tee shirt with the slogan, &#8220;I&#8217;ve got college on the brain&#8221; printed on the front.</p>
<p>So you have Sophie here for the social aspects, not academic, right? she asked.</p>
<p>Here we go, I thought.</p>
<p>Well, I said, stammering a little, yes, sure, socialization is important. But I don&#8217;t want to give up on academics off the bat. Wouldn&#8217;t there be modifications made to the curriculum?</p>
<p>This woman just wasn&#8217;t sure about that. Understandably, it was the end of the first week; she didn&#8217;t know Sophie well, she explained. But then she went on, clearly having already made up her mind about my kid.  She explained that her class is very fast-paced, that by the end of the first semester, the students will have learned 6,000 new vocabulary words. That they were expected to take a lot of notes. The text book is tough to read, she said, adding that she&#8217;d reviewed Sophie&#8217;s scores and noticed her reading level was in the second to third grade range. She just didn&#8217;t see how this would work. Furthermore, she said, Sophie had actually gotten up out of her seat once during the week and headed for the door.</p>
<p>I felt my face get hot. I knew Sophie had slipped below grade level a little in her reading, but I didn&#8217;t know how much. No one had ever told me that. I didn&#8217;t know what to say. &#8220;Don&#8217;t judge my kid by her test scores&#8221; seemed a little defensive. We were one person in and I&#8217;d lost my way in this meeting, begun to doubt this entire decision. I looked at Mrs. W.</p>
<p>She jumped in without missing a beat, explaining gently how Sophie&#8217;s curriculum had been adjusted during elementary school so that, for example, she might not learn every vocabulary word, but the most important ones. Heads nodded around the table.</p>
<p>Oh, and the door incident? Mrs. W. explained that. Someone had knocked, and Sophie had gotten up to answer the door. She&#8217;d returned to her seat as soon as she was asked to.</p>
<p>We all agreed that it was too soon to make any final decisions about modifications, that this was just a meeting to get acquainted and open lines of communication.</p>
<p>The rest of the meeting went pretty well, and I tried to focus on what the other teachers were saying as that first teacher&#8217;s words played on a loop in my head. I finally felt better when we got to the language arts teacher, new to the school this year.</p>
<p>Now, I AM NOT A RELIGIOUS PERSON. If you have read this blog at all, you know that. But this was one of those moments that makes you feel like the universe is looking out. The language arts teacher, who had slipped into the meeting late and is new to the school this year, explained that before becoming an elementary school teacher, she had two primary interests: teaching ballet and researching Down syndrome.</p>
<p>At my behest, she gave a quick but lovely explanation to the group of what it means to have Down syndrome &#8212; of how it affects every bit of your physical self, of what the cognitive challenges are, and of how much people with DS can accomplish. She told everyone how thrilled she is to have Sophie in class, that she had already purchased a wide-rule notebook to accommodate her handwriting challenges and that while she gives pop quizzes, Sophie would always have time to prepare. She feels confident, she told the group, that Sophie will succeed.</p>
<p>The school psychologist suggested that perhaps the language arts teacher could give a presentation about Down syndrome to the entire staff at the school. I think that&#8217;s a great idea.</p>
<p>After the meeting, I looked around for the language arts teacher. I wanted to talk to her more about Down syndrome, and ask her about her ballet training. But she&#8217;d disappeared, almost like an aparition. Instead, the teacher in the purple shirt scooted her chair closer. She wanted to tell me all about her own background training in special education and how, in fact, she trains special education teachers at a nearby university. (It&#8217;s amazing to me how often I encounter teachers and administrators who want to tell me about their special ed background &#8212; and how not all but many of them have not only left special ed but seem to have no idea what it should entail. In fact, &#8220;My training is in special education&#8221; has become my biggest red flag.)</p>
<p>I kept my mouth shut and tried to smile. It&#8217;s going to be a long year. Friday was an important reminder that it&#8217;s not going to be easy.</p>
<p>Thank goodness Mrs. W. has been cast in the supporting role.</p>
<p>&nbsp;</p>
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