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Last night we had a family reunion of sorts. Annabelle and I had traveled to northern California for spring break — the college tour has begun — while Ray and Sophie attended his grandfather’s 100th birthday party in New York. We regrouped over beer (for the grown ups) and Cornish pasties and I realized that today was World Down Syndrome Day.

“So, um, you’re supposed to wear crazy socks or something like that,” I told the girls. Sophie made a face.

“Well, you could wear a tee shirt that says something about Down syndrome,” Annabelle said.

Sophie shook her head.

I get it. I like to say that for me, every day is World Down Syndrome Day — but for Sophie, it REALLY is. And I can only imagine what goes on in her head in such situations. I got a taste last night.

“Hey,” Ray said. “In honor of World Down Syndrome Day, we should tell people about how Sophie can do a slope equation in algebra.”

Annabelle, Ray and I started compiling a list — Sophie can do the splits, Sophie knows the capital of the Byzantine Empire, Sophie can use a computer better than her mom, Sophie can swim the butterfly, Sophie has a poodle, Sophie is an amazing modern dancer.

Sophie shook her head hard and told us to stop. Then she got up, moved to the next table, and started tapping on the phone. She came back with her own list — way better than ours. I’d envisioned 21 items in honor of that extra 21st chromosome, but Sophie got to 32 so what the heck, here (completely unedited) is her list of 32 Things Sophie Wants You to Know About Her on World Down Syndrome Day:

Sophie Likes to Make friends easy
Sophie is a nice sister
Sophie has good friends
Sophie is nice to others
Sophie has a lot of friends who are boys
Sophie is kind
Sophie is nice
Sophie likes to hangout with her babysitter
Sophie hangout with her Friends
Sophie likes watch her show fuller house
Sophie likes to lo listen to her music
Sophie cuddles with her mom
Sophie has a book about her
Sophie likes to have sleepovers with her friends
Sophie likes to travel
Sophie likes to try new foods
Sophie does not like spicy food
Sophie is awesome
Sophie is the best
Sophie is a good dancer
Sophie likes to sing
Sophie likes to act with friends
Sophie does camps in the summer
Sophie is kind to others
Sophie is sweet
Sophie likes piglet
Sophie loves To watch fixer upper and cuddle with her mom
Sophie has good clothes
Sophie has an amazing sister in The Whole wide world
Sophie likes to go shopping
Sophie does cheer
Sophie loves cranberry juice

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9 Responses to “32 Things Sophie Wants You to Know About Her on World Down Syndrome Day”

  1. I think Sophie might like our Sara! https://youtu.be/D0vE8wyYqLc

  2. I send hugs to your wonderful family!

  3. The world needs,more Sophies living that list.

  4. What a great post!!! Quite a list. Couldn’t have summed her up better myself.

  5. Sophie also hogs the cheese crisps.

  6. We can identify with most of Sophie’s list. Tell her to keep adding on to it.

  7. Kindness and cuddles are everything. Great list, Sophie!

  8. brava Sophie . .what a list .now write a play . . you can do ANYTHING!! more more more love . xx

  9. Such a great list Sophie!!

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My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome is available from Amazon and 
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