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	<title>Comments on: We Don&#8217;t Need Another Tiny Superhero. Or Do We?</title>
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		<title>By: Tybee</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-187294</link>
		<dc:creator><![CDATA[Tybee]]></dc:creator>
		<pubDate>Thu, 22 Sep 2016 05:10:56 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-187294</guid>
		<description><![CDATA[Thank you for sharing your perspective.]]></description>
		<content:encoded><![CDATA[<p>Thank you for sharing your perspective.</p>
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		<title>By: Nicole</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-184653</link>
		<dc:creator><![CDATA[Nicole]]></dc:creator>
		<pubDate>Tue, 09 Aug 2016 15:47:45 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-184653</guid>
		<description><![CDATA[Thanks for asking the tough question and always looking at the other side of the coin. I don&#039;t have any answers either, but I appreciate anyone who is willing to address the question. 

Don&#039;t ever feel &quot;shame&quot; for feeling the way that you do.]]></description>
		<content:encoded><![CDATA[<p>Thanks for asking the tough question and always looking at the other side of the coin. I don&#8217;t have any answers either, but I appreciate anyone who is willing to address the question. </p>
<p>Don&#8217;t ever feel &#8220;shame&#8221; for feeling the way that you do.</p>
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		<title>By: Noan</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-184311</link>
		<dc:creator><![CDATA[Noan]]></dc:creator>
		<pubDate>Thu, 04 Aug 2016 03:42:42 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-184311</guid>
		<description><![CDATA[You brought up good questions.  I have no answers. But can I just say that I loved the dialogue with your girls.  I enjoyed that immensely.]]></description>
		<content:encoded><![CDATA[<p>You brought up good questions.  I have no answers. But can I just say that I loved the dialogue with your girls.  I enjoyed that immensely.</p>
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		<title>By: Sadie</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-183965</link>
		<dc:creator><![CDATA[Sadie]]></dc:creator>
		<pubDate>Fri, 29 Jul 2016 09:10:15 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-183965</guid>
		<description><![CDATA[I think it can be both, but well-meaning though some of these gestures are, that doesn&#039;t stop them from also being perhaps misguided. I don&#039;t know...I try not to be too judgey either, because as Patricia says above, we do need allies. At the same time, there needs to be a critical discussion of what we understand about disability in society, and sometimes these things obscure that. The thing that strikes me about the email you received is it&#039;s contradictory message: on the one hand, DS (or disability generally) is something to be &#039;overcome&#039;, and on the other it&#039;s a &#039;super power&#039;? That doesn&#039;t sit right with me. 

As always, thanks for this peek into your life with Sophie - always thouoght-provoking and gives me excitement for what lies ahead with my own daughter!]]></description>
		<content:encoded><![CDATA[<p>I think it can be both, but well-meaning though some of these gestures are, that doesn&#8217;t stop them from also being perhaps misguided. I don&#8217;t know&#8230;I try not to be too judgey either, because as Patricia says above, we do need allies. At the same time, there needs to be a critical discussion of what we understand about disability in society, and sometimes these things obscure that. The thing that strikes me about the email you received is it&#8217;s contradictory message: on the one hand, DS (or disability generally) is something to be &#8216;overcome&#8217;, and on the other it&#8217;s a &#8216;super power&#8217;? That doesn&#8217;t sit right with me. </p>
<p>As always, thanks for this peek into your life with Sophie &#8211; always thouoght-provoking and gives me excitement for what lies ahead with my own daughter!</p>
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		<title>By: Robyn Rosenberger</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-183958</link>
		<dc:creator><![CDATA[Robyn Rosenberger]]></dc:creator>
		<pubDate>Fri, 29 Jul 2016 03:49:06 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-183958</guid>
		<description><![CDATA[Hi Amy!

Well, I can&#039;t say that my heart doesn&#039;t hurt to know that this is how you felt, but I do appreciate your feelings and will definitely keep them in mind going forward. In the 9,000+ capes we have sent, I have yet to hear from a mom who was offended by the offer. I am very sorry you felt this way.

Truth is - TinySuperheroes has changed my life and my heart.  I can&#039;t think of a single thing I would rather do with my time in this world. The Extraordinary families I have been blessed to get to know through the past three years have taught me more than I ever could have imagined about the world, about myself, and about being a mom.

I hope that any offense you have felt can perhaps feel a bit better after hearing from me. Certainly offending your family is the furthest from my intention, and definitely not the reason I have dedicated my life to TinySuperheroes.

Much love to your family,

Robyn]]></description>
		<content:encoded><![CDATA[<p>Hi Amy!</p>
<p>Well, I can&#8217;t say that my heart doesn&#8217;t hurt to know that this is how you felt, but I do appreciate your feelings and will definitely keep them in mind going forward. In the 9,000+ capes we have sent, I have yet to hear from a mom who was offended by the offer. I am very sorry you felt this way.</p>
<p>Truth is &#8211; TinySuperheroes has changed my life and my heart.  I can&#8217;t think of a single thing I would rather do with my time in this world. The Extraordinary families I have been blessed to get to know through the past three years have taught me more than I ever could have imagined about the world, about myself, and about being a mom.</p>
<p>I hope that any offense you have felt can perhaps feel a bit better after hearing from me. Certainly offending your family is the furthest from my intention, and definitely not the reason I have dedicated my life to TinySuperheroes.</p>
<p>Much love to your family,</p>
<p>Robyn</p>
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		<title>By: Alex</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-183949</link>
		<dc:creator><![CDATA[Alex]]></dc:creator>
		<pubDate>Fri, 29 Jul 2016 00:02:24 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-183949</guid>
		<description><![CDATA[Wow... I&#039;m completely shocked at your interpretation and reaction to the TS email... Shame on you. 

For full transparency, I run marketing efforts for TS and my opinion here is my own and does not reflect that of TS or Robyn. 

So I want to address various things that ran through my mind while reading this:

1) This was a private conversation between you and Robyn. Did you let her know you were going to put her email out on your public blog? Did you even respond??
Does that seem ok with you? 

2) The american express video was something they did for TS for free for a project and highlighted TS. Since it was well produced, she is using it on her website now. Are you inferring she sold-out or something? 

3) She is dedicating her life to normalize children&#039;s’ disabilities and inspire LOVE so that when they go about their life they aren&#039;t seen as different, rather they now are a “Tiny Superhero” that other kids who also have capes can find common ground with. So this is not about highlighting a disability like DS, obviously. It&#039;s highlighting what kids DO have in common. About understanding and accepting others who are different, and most of all, EMPOWERING children who struggle with illnesses or disabilities daily. 

4) When you purchase a cape you also become part of a community where it becomes more that just a &quot;cape&quot; -- you compared to a &quot;mechanical pencil&quot; -- that’s the parent&#039;s job of explaining to their child how they can interpret empowerment. 

5) Quite frankly, I&#039;m personally most offended by this post for 3 reasons 1) your lack of consideration of privacy to someone just reaching out to you to work together 2) There is so much you could highlight in this world that needs to be shared, and you focused your once a month post to blast her and her small business like this - did you see she highlighted you before you doing anything for her as a top mom blogger?? That’s how you respond? 3) This one really upset me...You are inferring she&#039;s exploiting these kids’ disabilities for her own benefit.?!??...  Knowing Robyn personally, this couldn&#039;t be further from the truth. She spends hours and hours of her time emailing parent and connecting with them. Parents with children who have much more serious disabilities than DS or who have just lost a child. You didn’t even respond to her email and ask her about your concerns?? How dare you publicly assume. Sounds a bit hypocritical given you have a book out about your child&#039;s special needs too, doesn’t it?? But I won&#039;t be quick to assume like you were... Do some more self reflecting please…. Feel free to republish my response. 

Alex]]></description>
		<content:encoded><![CDATA[<p>Wow&#8230; I&#8217;m completely shocked at your interpretation and reaction to the TS email&#8230; Shame on you. </p>
<p>For full transparency, I run marketing efforts for TS and my opinion here is my own and does not reflect that of TS or Robyn. </p>
<p>So I want to address various things that ran through my mind while reading this:</p>
<p>1) This was a private conversation between you and Robyn. Did you let her know you were going to put her email out on your public blog? Did you even respond??<br />
Does that seem ok with you? </p>
<p>2) The american express video was something they did for TS for free for a project and highlighted TS. Since it was well produced, she is using it on her website now. Are you inferring she sold-out or something? </p>
<p>3) She is dedicating her life to normalize children&#8217;s’ disabilities and inspire LOVE so that when they go about their life they aren&#8217;t seen as different, rather they now are a “Tiny Superhero” that other kids who also have capes can find common ground with. So this is not about highlighting a disability like DS, obviously. It&#8217;s highlighting what kids DO have in common. About understanding and accepting others who are different, and most of all, EMPOWERING children who struggle with illnesses or disabilities daily. </p>
<p>4) When you purchase a cape you also become part of a community where it becomes more that just a &#8220;cape&#8221; &#8212; you compared to a &#8220;mechanical pencil&#8221; &#8212; that’s the parent&#8217;s job of explaining to their child how they can interpret empowerment. </p>
<p>5) Quite frankly, I&#8217;m personally most offended by this post for 3 reasons 1) your lack of consideration of privacy to someone just reaching out to you to work together 2) There is so much you could highlight in this world that needs to be shared, and you focused your once a month post to blast her and her small business like this &#8211; did you see she highlighted you before you doing anything for her as a top mom blogger?? That’s how you respond? 3) This one really upset me&#8230;You are inferring she&#8217;s exploiting these kids’ disabilities for her own benefit.?!??&#8230;  Knowing Robyn personally, this couldn&#8217;t be further from the truth. She spends hours and hours of her time emailing parent and connecting with them. Parents with children who have much more serious disabilities than DS or who have just lost a child. You didn’t even respond to her email and ask her about your concerns?? How dare you publicly assume. Sounds a bit hypocritical given you have a book out about your child&#8217;s special needs too, doesn’t it?? But I won&#8217;t be quick to assume like you were&#8230; Do some more self reflecting please…. Feel free to republish my response. </p>
<p>Alex</p>
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		<title>By: Patricia Tice</title>
		<link>http://girlinapartyhat.com/index.php/2016/07/we-dont-need-another-tiny-superhero-or-do-we/comment-page-1/#comment-183411</link>
		<dc:creator><![CDATA[Patricia Tice]]></dc:creator>
		<pubDate>Wed, 20 Jul 2016 17:06:14 +0000</pubDate>
		<guid isPermaLink="false">http://girlinapartyhat.com/?p=5766#comment-183411</guid>
		<description><![CDATA[I can&#039;t help being suspicious of people that totally &quot;love&quot; people with DS or other disabilities.  I&#039;m grateful for their support (we all could use it) but it feels more about them than about Katie or the other kids with DS.  I just don&#039;t get it.  No one goes out of their way to say the totally &quot;love&quot; gifted kids, with oozing smiles--probably for good reason.  We were always proud, snotty brats--geniuses but brats.  Kids with DS are often stubborn, manipulative and a bit needy, but if you only spend time with them during respite care it will take several years to figure that out--and I&#039;m hoping it takes you nearly forever because I need the respite.  Don&#039;t get me wrong...I love Katie and I am curious about other kids with DS when I see them.  But I&#039;m interested to see what the person is like so I can really get to know them as a person, not just as a person with DS.  Some I don&#039;t care for; many I do.  It has almost nothing to do with their disability other than the curiosity about a shared experience.  When we get around to seeing people with disabilities as people, we&#039;ll find exactly that--a shared experience with people we may or may not like.  That feels more authentic to me.  The people who really deserve the capes are the parents of autistic kids--but that&#039;s a topic for another day.]]></description>
		<content:encoded><![CDATA[<p>I can&#8217;t help being suspicious of people that totally &#8220;love&#8221; people with DS or other disabilities.  I&#8217;m grateful for their support (we all could use it) but it feels more about them than about Katie or the other kids with DS.  I just don&#8217;t get it.  No one goes out of their way to say the totally &#8220;love&#8221; gifted kids, with oozing smiles&#8211;probably for good reason.  We were always proud, snotty brats&#8211;geniuses but brats.  Kids with DS are often stubborn, manipulative and a bit needy, but if you only spend time with them during respite care it will take several years to figure that out&#8211;and I&#8217;m hoping it takes you nearly forever because I need the respite.  Don&#8217;t get me wrong&#8230;I love Katie and I am curious about other kids with DS when I see them.  But I&#8217;m interested to see what the person is like so I can really get to know them as a person, not just as a person with DS.  Some I don&#8217;t care for; many I do.  It has almost nothing to do with their disability other than the curiosity about a shared experience.  When we get around to seeing people with disabilities as people, we&#8217;ll find exactly that&#8211;a shared experience with people we may or may not like.  That feels more authentic to me.  The people who really deserve the capes are the parents of autistic kids&#8211;but that&#8217;s a topic for another day.</p>
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