Comments on: Travels with Sophie

By: Amysilverman

Amysilverman — Fri, 17 Jul 2015 18:41:06 +0000

Thanks for the questions — I ask them, too. No, we don’t tell her she can’t do stuff. Sometimes I wonder if it’s because she’s mainstreamed so much that she gets frustrated, feeling like she can’t keep up. Most definitely a lot of it is because she wants to do what her sister does. I haven’t asked her but watching her navigate life sometimes it feels like Sophie is doing the same things we’re doing but inside a vat of jello — does that make sense? That something she doesn’t really understand (because it’s hard I think for any of us to get our arms around a chromosomal defect and the implications) is making everything just a little more difficult for her. And some things a lot more difficult. And I think that tweens and teens want to blend in, not be different, and she knows DS makes her different. I don’t ask her about this stuff a lot, I let her bring it up and that happens but rarely. I don’t want to dwell on it…. So I’m really not sure.

By: Amysilverman

Amysilverman — Fri, 17 Jul 2015 18:37:23 +0000

I will ask her to write a guest post! She loves to and hasn’t for a while…. Thanks for the suggestion.

By: Amysilverman

Amysilverman — Fri, 17 Jul 2015 18:36:51 +0000

I think it’s more deep. And I think it has a lot to do with not being able to do what AB does.

By: Stefanie

Stefanie — Thu, 16 Jul 2015 23:50:36 +0000

Sometime, if you ever want to come to the annual Skihawks picnic, the last Sunday in June, let me know in advance. Sophie can meet some Awesome adults with DS!!!

By: Robert Polk

Robert Polk — Thu, 16 Jul 2015 23:34:55 +0000

When I first got into GIAPH, near its beginning, Sophie’s mom was generally, for lack of a better term, fretting, and wondering where this DS journey would go, or even fail.

This episode reveals that we’ve all “come a long way, Baby.” We don’t necessarily LIKE it, but it’s gonna work.

You have a great ministry here, Amy.

By: Lisa (Sophie's future MIL)

Lisa (Sophie's future MIL) — Thu, 16 Jul 2015 23:33:00 +0000

I wonder if she thinks about it the same way I think about blackheads or curly hair or any number of traits, or if it’s something more deep to her?

By: chewdapoo

chewdapoo — Thu, 16 Jul 2015 23:13:35 +0000

I would love to read about how Sophie views her travels and experiences next to yours. I think it would be eye opening just as your writings are.

By: Jaida

Jaida — Thu, 16 Jul 2015 23:11:26 +0000

I’m very curious as to any thoughts you might have regarding why she wishes she didn’t have Ds? I know some social stuff has been tough for her…do you think she attributes that to Ds? I assume you’re not constantly telling her about things she may *not* be able to do so it’s just really interesting to think about how she feels Ds holds her back (or makes her stand out, or whatever it is). Anyway, I love the thought of Travels with Sophie, and I hope that she – and the world at large – continue to enjoy that for years to come.

By: jonas

jonas — Thu, 16 Jul 2015 23:06:37 +0000

so great! though the next time you’re in PDX (and so very close to my office!), I hope we can get together for a drink… or so I can hand Sophie a toothbrush, too.