Comments on: It Came from the (Down syndrome) Box: "We'll Paint the Octopus Red" and "My Friend Isabelle" http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/ Girl in a Party Hat Mon, 02 May 2022 06:16:31 +0000 hourly 1 https://wordpress.org/?v=3.9.40 By: jonashpdx http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-485 Wed, 04 Mar 2009 05:55:13 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-485 hi.

I just found your blog (via Welcome to Illinois), and this is by far my favorite post so far.

Unfortunately, I have a mother who used to love to dress me in overalls as a wee bairn, though I’ve luckily mostly put a stop to that with my son…so far.

]]> By: Cate http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-495 Wed, 25 Feb 2009 22:06:30 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-495 What!?! Why are you only doing this for a year? I will be sad not to read your blog.

Thanks for the reviews. I’m going to order all of them from the library.

]]> By: hayah.cc http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-494 Sat, 21 Feb 2009 08:37:43 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-494 wow very nice
really i like this blog
thanks

]]> By: elewinnek http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-493 Fri, 20 Feb 2009 19:41:48 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-493 I agree with Sue.

]]> By: maya http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-492 Fri, 20 Feb 2009 17:02:00 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-492 I really hope you don’t stop in May. I would really miss reading you. I agree with everything you said style wise re. DS. I am also anti-sweatpants for Leo (besides for sleeping in). Don’t really have a good explanation for it, but there you go. I love the look of My Friend Isabelle. I’ll have to check it out. Have you seen the board book “I Can, Can you?” It’s pictures of babies and toddlers with Ds, just living their lives. No mention of Ds. Both my kids love it.

]]> By: Kathy http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-491 Fri, 20 Feb 2009 16:51:48 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-491 Amy,

I’ll go out on a limb to suggest that maybe you started this blog, at least in part, to explore this whole deal outside the box anyway. You’re not a “living in the box” person in any way in your life now or before Sophie was born. She’s teaching you, you’re teaching Annabelle, Annabelle is teaching her fellow students, and you, Ray, Annabelle and Sophie are all teaching US. It’s organic. Which is why I think people love reading your blog.

You are writing your own book.

]]> By: Sue http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-490 Fri, 20 Feb 2009 15:43:05 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-490 You should write a childrens book about D.S. ….Yes you should.
Are you really going to stop this after one year?????? Noooooo!

]]> By: jennifergg http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-489 Fri, 20 Feb 2009 12:44:27 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-489 I agree with you, on all counts. I’d love to see more books like “My Friend Isabelle,” too.

I’m a writer and mom to a child with DS, too…I wonder if you know about my book? I’d love to send you a copy, if you haven’t, but I should warn you that it very well might be “too close.” Or not. Maybe it will feel familiar and true, which is the way your writing feels, to me.

xo

]]> By: Kim http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-488 Fri, 20 Feb 2009 04:25:43 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-488 My husband and I have been reading your blog for a while now, after having heard you on NPR. And I laugh out loud sometimes and can be teary eyed all within a single sentence. Tonight I laughed out loud about the mention of style. We truly believe that no one ewith DS should be allowed to wear overalls. I’m a graphic designer so I’m well aware of style and looks – when we see someone wearing overalls we call it “DS Old School”. We are not trying to be mean… more light hearted… thanks for the blog.

]]> By: rickismom http://girlinapartyhat.com/index.php/2009/02/it-came-from-the-down-syndrome-box-well-paint-the-octopus-red-and-my-friend-isabelle/comment-page-1/#comment-487 Fri, 20 Feb 2009 00:50:48 +0000 http://girlinapartyhat.wordpress.com/?p=968#comment-487 Woodbine put out a series of books several years ago, about a boy with DS—no mention is made… but you can see it. I actually like that no mention is made. You can add what you want!
He is shown doing things. I saw only one of the three books (Russ and the Almost Perfect Day , by Janet Elizabeth Rickert), and it was very good, showing him in aninclusion setting, and his struggle with the moral question of whether to return lost money he found.
Problem is, they are out of print, and cost way too much to buy on Yahoo. (Maybe Amazon has cheaper?) Maybe one can find in an inter library loan.

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